Very powerful video. My heart goes out to Samuel and his mother. But there is a lot to take from it that is bigger than how awful and tragic it is. I think the point about wanting people to hear the story is important in itself because there is that thing of respect and what people can do as a minimum to at least look at and hear someone's voice and witness but also know about that person as they want but also should be known (who they are and the full picture of things), even if they couldn't change what happened.
So much to think about/discuss regarding what the doctor said.
I want to share this, but a big question that is perhaps for a thread of its own or applying as a question to other similar things is how do I get those who don't have ME/CFS (and again we can't assume even all pwme will want to) to watch it.
As a minimum I think about what line I might want to put with it - obviously it needs a trigger warning but it is more than that (which I'd like to feel I could nudge people into realising before they watch). And I think does a very good job of getting across what the illness is in the sense of those who perhaps misunderstand it, and the situation (which in Austria is that there are some doctors who recognise it and treat but not enough).
And then thinking of the specific cultural context (UK) and misinformation others might have as assumptions, how people are 'feeling right now' impacting what they watch and how they take it in, and then the different individuals (which given it is social media would need to be people I know, and I'm very aware it isn't the set-in-ways bps-ers or those with conflicts of interests as their business relies on wellness-therapies etc) I'd want to really hear it and hear certain messages from it.
