arewenearlythereyet
Senior Member (Voting Rights)
I’ve found this thread useful to get my head around the terms since having undergone pacing and then GET at a CFS clinic I’ve always had mixed feelings about how I received my “treatment”
When I first went to the clinic I was in a right pickle and couldn’t walk the few yards to the letter box to post my sick note to my employer. The clinic did help me understand proper pacing and the boom and bust description was helpful at the time to get me to baseline. They also described the delayed reaction and the principle of preemptive pacing quite well. I will be grateful for that.
I was always told that I was such a good receptive patient so didn’t need any CBT and at the time I didn’t have any concept of the Politics/PACE trial etc. I was just relieved I had a diagnosis and was receiving treatment. How stupid was I?
Once I was pacing properly I could do more. The GET when it went beyond baseline was bloody obvious that it wasn’t working so I decided not to continue and returned to pacing. The therapist was at a loss as to what to do..it was all going so,well up until that point.
I guess what I’m saying (in far too many words) is that for proper pacing boom and bust ...it’s an ok description...it described what was happening to me without pacing. So I did find the terms useful to help me to accept and manage pacing. It seems obvious now that this was designed for a different purpose but it did help me when no other help was available. I guess when psychiatrists and their cronies will twist words for as long as people listen to them. I wonder what is a better way of describing pacing and baseline to a novice?
When I first went to the clinic I was in a right pickle and couldn’t walk the few yards to the letter box to post my sick note to my employer. The clinic did help me understand proper pacing and the boom and bust description was helpful at the time to get me to baseline. They also described the delayed reaction and the principle of preemptive pacing quite well. I will be grateful for that.
I was always told that I was such a good receptive patient so didn’t need any CBT and at the time I didn’t have any concept of the Politics/PACE trial etc. I was just relieved I had a diagnosis and was receiving treatment. How stupid was I?
Once I was pacing properly I could do more. The GET when it went beyond baseline was bloody obvious that it wasn’t working so I decided not to continue and returned to pacing. The therapist was at a loss as to what to do..it was all going so,well up until that point.
I guess what I’m saying (in far too many words) is that for proper pacing boom and bust ...it’s an ok description...it described what was happening to me without pacing. So I did find the terms useful to help me to accept and manage pacing. It seems obvious now that this was designed for a different purpose but it did help me when no other help was available. I guess when psychiatrists and their cronies will twist words for as long as people listen to them. I wonder what is a better way of describing pacing and baseline to a novice?