Blog: Hilda Bastian "Six Months Later: What Their Response on ME/CFS Tells Us About the Cochrane Collaboration"

[dave30th]

Trial By Error: Cochrane CFS/ME Exercise Review "May Not Apply" to Patients Diagnosed with Newer ME/CFS Definitions, Per Lead Author | Virology Blog

By David Tuller, DrPH It’s hard to keep up with everything going on in this field these days. So I missed the fact that Lillebeth Larun, the lead author beh ...

virology.ws

 

[Hutan]

That's a good blog @dave30th, a succinct summary. Thanks to commenter who added the link to the petition.

 

[hotblack]

Great summary @dave30th Thank you.
Flabbergasting response from the lead author. They really do seem insistent in thing themselves in knots rather than just saying “yeah, this could have been done better” and withdrawing it.

 

[rvallee]

Not that it applies to any other group either. The whole thing has been revealed as a total scam, regardless of what criteria are used. It makes no meaningful difference for anyone who has fatigue significant enough to warrant a complaint to a health care professional. And even then "I have fatigue" is almost never the actual complaint, all of this is just a corrupt distortion of basic facts with very flawed intent and purpose.

But seeing the pathetic state of Long Covid, stuck in the exact same bind, it's cleat that none of the problems have anything to do with the patients, and everything to do with the terrible state of health care for any issues where the biology is not understood. This is what needs to be fixed. The medical profession needs to do the equivalent of putting on their own oxygen masks before they start thinking about putting it on someone who is unable to. The industrial scale publication and application of flawed pseudoscience is a major scandal in itself, and the industry is clearly incapable of moving out of it.