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BBC Stories: "I had it all - now I create a new world in a single room"

Discussion in 'General ME/CFS News' started by Webdog, Jan 2, 2018.

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  1. Webdog

    Webdog Senior Member (Voting Rights)

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    BBC covers the realities of living with ME.

    http://www.bbc.com/news/stories-42404500
     
    Webdog, Jan 2, 2018
    #1
    zzz, Zombie Lurker, Joel and 24 others like this.
  2. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Andy, Jan 2, 2018
    #2
    RuthT, Joel, inox and 14 others like this.
  3. TiredSam

    TiredSam Moderator Staff Member

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    Unbelievably good article for the BBC website, who usually completely ignore M.E. Can't find one thing to grumble about here. Now what am I going to do?
     
    TiredSam, Jan 2, 2018
    #3
    RuthT, Zombie Lurker, Ron and 14 others like this.
  4. Andy

    Andy Committee Member (& Outreach when energy allows)

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    You could complain about not having anything to grumble about?
     
    Andy, Jan 2, 2018
    #4
    Viola, ladycatlover, Webdog and 8 others like this.
  5. Alvin

    Alvin Senior Member (Voting Rights)

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    I can grumble "People do get better from this illness"
    While technically true the remission rate of people who have had it for 5 years or more i would guess probably something like 5%. Meaning a 95% chance of having this for life. 95% non remission rate would make a lot more impact.

    Otherwise the article looks unimpeachable (not that i actually read all of it, i can only skim it currently).
     
    Alvin, Jan 2, 2018
    #5
    Viola, Joel, Subtropical Island and 5 others like this.
  6. TiredSam

    TiredSam Moderator Staff Member

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    Good spot.

    Also this:

    The phrase "treatment he needed" implies that an M.E. sufferer can go to a doctor and the doctor will say "It's M.E., you need this treatment" and offer something useful, which is very far from most M.E. sufferers' experience.

    I'm happy now. You just have to look hard enough for something to grumble about. I woke up in a good mood this morning for some reason, sorry, normal service will be resumed as soon as possible.
     
    TiredSam, Jan 2, 2018
    #6
    Subtropical Island, ladycatlover, 2kidswithME and 11 others like this.
  7. Alvin

    Alvin Senior Member (Voting Rights)

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    I don't call it grumbling, i call it fact checking :woot:
     
    Alvin, Jan 2, 2018
    #7
    ladycatlover, Squeezy, EzzieD and 3 others like this.
  8. TiredSam

    TiredSam Moderator Staff Member

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    Oh great, now I've got some nit-picking to grumble about. Today's just getting better and better.
     
    TiredSam, Jan 2, 2018
    #8
    Barry, zzz, Viola and 11 others like this.
  9. Alvin

    Alvin Senior Member (Voting Rights)

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    I assume you would agree its better then alternative fact checking :D
     
    Alvin, Jan 2, 2018
    #9
    Barry, ladycatlover, Valentijn and 6 others like this.
  10. TiredSam

    TiredSam Moderator Staff Member

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    hmph.
     
    TiredSam, Jan 2, 2018
    #10
    ladycatlover, Squeezy, Invisible Woman and 3 others like this.
  11. Trish

    Trish Moderator Staff Member

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    I think it's an excellent article. Yes, he talks about treatment, but it's clear from his continuing level of disability that the treatment is, sadly, not enabling him to lead anything like a normal life. He may be talking about symptomatic treatment and possibly antivirals etc which seem to help some people.

    Well done BBC, for once.
     
    Trish, Jan 2, 2018
    #11
    Zombie Lurker, Subtropical Island, ladycatlover and 10 others like this.
  12. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    Great article. Healthy people I know are sharing it which is brilliant.
    Just to add to Andy's request - please invite him to join us here Twitterers.
     
    Liv aka Mrs Sowester, Jan 2, 2018
    #12
    MEMarge, ladycatlover, Indigophoton and 7 others like this.
  13. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Andy, Jan 2, 2018
    #13
    ladycatlover, Indigophoton, Valentijn and 6 others like this.
  14. Alvin

    Alvin Senior Member (Voting Rights)

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    I'll be here all week. And maybe next week too. :laugh:
     
    Alvin, Jan 2, 2018
    #14
    Subtropical Island, ladycatlover, Squeezy and 3 others like this.
  15. guest001

    guest001 Guest

    Just seen it too and thought it was VG. Have messaged the author on FB to thank him.
     
    guest001, Jan 2, 2018
    #15
    ladycatlover, Indigophoton, Valentijn and 6 others like this.
  16. Barry

    Barry Senior Member (Voting Rights)

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    Is the BBC trying to reposition itself toward the good side of ME/CFS journalism at last? Common sense (or maybe just self preservation) finally filtering through? Maybe before so much of its atrocious non-coverage gets exposed for what it has been ... lip-service spoon-fed regurgitation of BPS propaganda. I wonder if Jen Brea's tweet asking what is going on with the UK media might even have helped?
     
    Barry, Jan 2, 2018
    #16
    RuthT, MEMarge, ladycatlover and 5 others like this.
  17. Barry

    Barry Senior Member (Voting Rights)

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    Blimey! I doubt that was sourced from the SMC. Has the BBC made a New Year's resolution or something? ... Change to the winning side?
     
    Barry, Jan 2, 2018
    #17
    ladycatlover, 2kidswithME, Valentijn and 4 others like this.
  18. Alvin

    Alvin Senior Member (Voting Rights)

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    Call me cynical but i doubt it, probably just luck an open minded reporter got this story.
     
    Alvin, Jan 2, 2018
    #18
    MEMarge, Subtropical Island, Art Vandelay and 9 others like this.
  19. Barry

    Barry Senior Member (Voting Rights)

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    I really meant is it forseeing that the truth is in the process of being exposed, and that the BBC will itself be exposed as part of the truth-suppression mechanism that has existed for so long. Maybe they are trying to sidle over to the winning side ... and hope nobody notices. We are fellow cycnics :).
     
    Barry, Jan 2, 2018
    #19
    MEMarge, EzzieD, TiredSam and 2 others like this.
  20. Alvin

    Alvin Senior Member (Voting Rights)

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    Too complicated, Occam's razor and all
     
    Alvin, Jan 2, 2018
    #20
    TiredSam, Squeezy, Wonko and 1 other person like this.
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