1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

BBC Sport: Channel swimmer Beth French on jellyfish, living with ME and her autistic son

Discussion in 'General ME/CFS news' started by Andy, Jul 26, 2019.

Tags:
  1. Andy

    Andy Committee Member

    Messages:
    21,944
    Location:
    Hampshire, UK
    https://www.bbc.co.uk/sport/swimming/49083125
     
    Andy, Jul 26, 2019
    #1
    DokaGirl and MEMarge like this.
  2. Trish

    Trish Moderator Staff Member

    Messages:
    52,284
    Location:
    UK
    Strange story. I'm glad for her she's found what helps. My only attempts to go swimming when my ME was mild led to extremely rapid exhaustion, pain and PEM.
     
    Trish, Jul 26, 2019
    #2
    rvallee, Annamaria, Hoopoe and 4 others like this.
  3. Daisybell

    Daisybell Senior Member (Voting Rights)

    Messages:
    2,631
    Location:
    New Zealand
    Swimming is much too aerobic for me to be able to handle. I can do floating and very slow short swims, but otherwise it’s a no-go. Like cycling or jogging....
    I used to do triathlons before I got sick.
    Now I get cramps in my abdomen just with keeping upright in a car.
     
    Daisybell, Jul 27, 2019
    #3
    rvallee, Annamaria, MeSci and 3 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,274
    Location:
    UK West Midlands
    Oh that’s it then we all need scaring witless by a shark and we’re going to be fine...........
     
    NelliePledge, Jul 27, 2019
    #4
    ukxmrv, Trish, DokaGirl and 2 others like this.
  5. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    I saw that and wondered about posting it. I thought I probably could not be trusted.

    But at last, she knows what is her trigger - "emotional, hormonal and psychological stress", something she now has the tools to cope with after ordaining as a Buddhist nun in Thailand and studying "intensive forms of meditation".

    Nothing about PEM then. Her diagnosis may have been correct, but, if so, the sub-group to which she belongs is not a large one.

    Good of the BBC to spread the message.
     
    chrisb, Jul 27, 2019
    #5
    rvallee, Annamaria, ukxmrv and 4 others like this.
  6. Andy

    Andy Committee Member

    Messages:
    21,944
    Location:
    Hampshire, UK
    To be fair she attributes that encounter with triggering a downturn in her health.
    What prompted me to post it was that the article uses ME prominently, and that it talks about finding a way to cope with her trigger, not with the illness itself, although I accept that will probably be too nuanced for the average, non-pwME, reader.

    Should anybody want to then they can listen to the original interview here, https://www.bbc.co.uk/programmes/p07hlqq5
     
    Andy, Jul 27, 2019
    #6
    Annamaria, MeSci, NelliePledge and 2 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,274
    Location:
    UK West Midlands
    Oh dear heat induced befuddlement made me misread that - ie not didn’t register - and I had in mind the other thread about people recovering after accidents.
     
    NelliePledge, Jul 27, 2019
    #7
    Annamaria, Rick Sanchez, Andy and 2 others like this.

Share This Page