BBC Radio London show focusing on ME, 23/08/18

[Andy]

I know no more about this than what AfME have posted on Facebook about it.

Making M.E. the focus of his Drivetime show today on BBC Radio London, Eddie Nestor MBE will hear from people living with M.E. about the impact of the condition on school, work and family life.

We are hugely grateful to Lucy, and to Ethan and his mum Dawn, and Taegan and her mum Samantha, who agreed to take part in the show after we contacted them this week, to raise awareness and understanding of M.E.

Action for M.E.'s Head of Young People's Services, Mary-Jane Willow, will also join Eddie to discuss in more detail about the challenges facing families affected by M.E., and the work we are doing to support them.

You can listen online from 4pm today - we'll be tuning in and tweeting live on our @actionforme Twitter feed.

 

[MSEsperanza]

 

[MSEsperanza]

 

[Esther12]

Mary Jane Willows, who arranged for flowers to be given to Esther Crawley on behalf of all patients, just after the inaugural lecture Crawley had given that excellently illustrated why patients should not be grateful for her work. Amazing any patient charity is still willing to work with MJW.

 

[Sly Saint]

"We have so few specialists in the UK. For those that want to see one, there should be funding - parents shouldn't have to fight for this," says Mary-Jane Willows."

that's Crawleys line and justification for FITNET-NHS, and we don't need or want any more of those 'specialists'.
I wish I could find the morning show with EC MJW and Jane Colby when MJW was helping to promote FITNET-NHS.

 

[Dolphin]