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Article: Please Stop Telling Me Your Natural Supplement Will 'Cure' My Illness

Discussion in 'Health News and Research unrelated to ME/CFS' started by Andy, Nov 20, 2017.

  1. Andy

    Andy Senior Member (Voting Rights)

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    https://themighty.com/2017/11/people-saying-natural-supplement-will-cure-chronic-illness/

    Just last week it was suggested to my wife that it was probably my diet that meant I was feeling tired...
     
  2. hixxy

    hixxy Established Member (Voting Rights)

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    I had an argument with my mum, who I live with, last week over these kinds of annoying suggestions. The biggest problem is that she doesn't take no for an answer so an argument becomes inevitable and ultimately makes me feel sicker than I already do.
     
  3. Mij

    Mij Senior Member (Voting Rights)

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    It seems to be taken quite seriously :rolleyes: vitamin.jpg
     
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  4. Woolie

    Woolie Committee member

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    Yea, the dark side of (false) hope. Despair, and blaming the patient for not trying hard enough.

    Honestly, it doesn't matter whether its "alternative" or "conventional", how much can we expect of any treatment that doesn't get at the mechanisms actually making us sick?

    We're not sick because we lack a certain vitamin, or because we ate badly before, or because our gut bacteria are weird. We're sick because something has gone horribly wrong in our bodies, and that needs to be fixed (or at least its effects on our body need to be minimised).

    At the very best - the very best - we can maybe relieve some small things that were adding to the problem.
     
    healthforall, Squeezy, Wonko and 11 others like this.
  5. Alvin

    Alvin Senior Member (Voting Rights)

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    Didn't read the link but i agree with the person who said there is no such thing as alternative medicine, medication either works or it does not.
    However the placebo effect can make people believe something works when in fact its a sham or even poisonous.

    So in conclusion where is my curative galvanic belt? :rofl:

     
    Last edited: Nov 21, 2017
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  6. Webdog

    Webdog Senior Member (Voting Rights)

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    From a New York Times article on "What Not To Say To A Cancer Patient".
     
    Last edited: Nov 21, 2017
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  7. Alvin

    Alvin Senior Member (Voting Rights)

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    Well written.
    One could substitute ME/CFS or any grave disease for cancer and the article means the same thing.
     
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  8. Woolie

    Woolie Committee member

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    I learned something too! I had a student with Hodgkin's lymphoma, and I plead guilty to saying "Is that the one with the relatively good prognosis?". :oops::muted:
     
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  9. MErmaid

    MErmaid Guest

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    I don’t really care how something is labeled or perceived, if a treatment works, then Bravo! If it fails, it’s gets thrown in the garbage.

    Regarding people making stupid remarks, unless I lock myself in my home, and have no contact with humans, they will continue. My dog looks at me like I am wonderful, beautiful, and amazing; now this is the kind of feedback I thoroughly enjoy :emoji_blush: :emoji_feet::heart:

    In the past, I admit it, I offered my fair share of suggestions to other people. Some were spot on while others were made in ignorance. I did the best I could at the time, with the knowledge I had.
     
    Last edited: Nov 21, 2017
  10. Esther12

    Esther12 Senior Member (Voting Rights)

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    The solution has been found!
     
  11. Allele

    Allele Senior Member (Voting Rights)

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    I'm almost there!
     
  12. Wonko

    Wonko Senior Member (Voting Rights)

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    It's more difficult than it looks, people are everywhere, for no apparent reason, and even if you lock yourself in and refuse to let anyone in, they now seem to be on the bloody internet as well.........

    :p
     
  13. Jenny TipsforME

    Jenny TipsforME Senior Member (Voting Rights)

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    @MErmaid my dog looks at me like I’ve no idea what I’m doing! Bet she’s longing to recommend something! Probably daily walks ;)

    I think this issue is more the lack of social skills in how people suggest stuff. Sometimes I’ve seen noticeable improvement after starting a supplement or similar. As far as I can remember, these have never been introduced to me as recommendations from healthies.

    What annoys me is the assumption that they have more knowledge than me on my condition and what may help. Apart from when I was too ill to read, if they stop to think about it this is very unlikely to be true, but they don’t stop to think before suggesting. :banghead:
     
  14. TiredSam

    TiredSam Moderator Staff Member

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    I rarely get given unwanted advice for some reason. On the few occasions it has happened, I just say that I've already been through the stage of playing detective and now have a plan for managing it that suits me, thanks.
     
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  15. Valentijn

    Valentijn Not a moderator

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    :expressionless:
     
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