Article: “I was ready to give up on my life with ME ... but Perrin treatment miraculously changed everything”

[Andy]

Not a recommendation. More an info-mercial for the Perrin treatment than anything else, in my opinion.

Jade says at first the treatment made her feel worse and she went downhill rapidly but Dr Perrin told her that was normal and to just carry on.

A few months into the treatment, Jade experienced a rare reaction when her nervous system went into shock - but it was the turning point in changing her life.

Jade explains: “After a particularly difficult appointment with lots of intense manipulation, my nervous system went into shock and I had 24 hours of not being able to move. “I could speak and open my eyes but apart from that, I had no movement whatsoever.

“Dr Perrin said it was a rare reaction but a good reaction and my body was just dealing with all the fluid that had moved out of the brain.

“It was terrifying but after the initial 24 hours, everything just accelerated and I got better everyday.

https://www.blackpoolgazette.co.uk/...ent-miraculously-changed-everything-1-8892153

 

[hinterland]

I’m not hostile towards the Perrin treatment, and don’t doubt Ray Perrin’s good intentions. But, personally, I would not continue with a treatment that made me go rapidly down hill for months on end with an uncertain outcome at the end of it. The 24hr paralysis and nervous system shock, in the case of this patient, sounds very worrying also.

 

[Scarecrow]

But, personally, I would not continue with a treatment that made me go rapidly down hill for months on end with an uncertain outcome at the end of it.

Yes, it's normal to feel worse for a few days after treatment. It felt very much like PEM to me with the increased heart rate to go with it. Why that should lead to an improvement over time is a mystery.

I agree that it stretches credibility that somebody would persevere for months.

 

[Melanie]

Not a recommendation. More an info-mercial for the Perrin treatment than anything else, in my opinion.

Just another reason why we can't get through to people how sick we are and that nothing works and there are a lot of dangerous therapies for ME/CFS out there including GET/CBT and Lightning Process.

 

[Valentijn]

I’m not hostile towards the Perrin treatment, and don’t doubt Ray Perrin’s good intentions.

I do. The research into his stuff is pretty poor, and one of the reviewers was his business associate, with no conflicts of interest listed. I didn't have a strong opinion until seeing that, but now he looks a simple scam.

 

[Alvin]

I find these likely coincidental spontaneous improvements attributed to unproven and likely sham treatment stories very annoying

 

[Adrian]

I find these likely coincidental spontaneous improvements attributed to unproven and likely sham treatment stories very annoying

I have a theory that when someone is starting to feel a little better they look for potential treatments, try things like this and continue to improve. When it is nothing to do with what is being tried and the improvement started prior to testing the treatment.

Which is of course why we need trials with proper selection.

 

[Scarecrow]

I have a theory that when someone is starting to feel a little better they look for potential treatments, try things like this and continue to improve.

While there may be something in that, it doesn't tie in with my own experience. I was heading downhill fast and would have been in danger of losing my job if I'd started having multiple absences.

It is of course possible that the reversal was spontaneous but I don't believe so. I improved to a certain level but no further, so I stopped treatment. Six months later I was significantly worse again so went back and once again improved.

I'm no longer seeing my osteopath but do feel the need of it again. If personal circumstances allow, I'll be going back next year. If I improve again but not before, it'll be a clincher for me.

Agree that we need trials but I'm not certain we'd be satisfied with the results unless they are conducted independently.

 

[Sly Saint]

The Perrin Technique has made its way to the US:
"Dr. Perrin has observed repeated physical patterns among sufferers that can’t be pure coincidence, including spinal irregularities, sore throat, and tender lymph nodes. The Perrin Technique for the diagnosis and treatment of CFS/ME was developed in 1989 and is now being offered at Well On The Way® LLC by Perrin Technique certified therapist, Elizabeth Pasquale. The Perrin Technique is new to the US, with only a few certified therapists nationally."
http://wellontheway.org/the-perrin-technique/