Aripiprazole - Abilify

Jaybee00 said:
https://www.medscape.com/viewarticle/938707

Antipsychotic Added to Antidepressant Linked to Higher Mortality
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From the little I could read without logging in, that did appear to be for antidepressant use in treating depression. Might make a difference?

leokitten said:
To me that’s just an inexcusable and lazy practice of medicine by these doctors. There are many other sleeping meds that are not benzos or their equally horrible cousins the z-drugs.

There are many other drugs for sleep and these doctors just have to research and think for once. Other sleep drugs can have far fewer side effects and virtually zero long-term effects.
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Please do tell. My caree is on a Z, and not finding it helps that much with her sleep any more. I think she'd love to change, if only she knew what to.
 
Ron Davis mentioned in his short talk that they have done a small pilot with Abilify and so far 80% showed some improvement. Some a lot, some a little, no numbers or time span specified and not published. It didn't sound like a formal pilot study, more like a few people have tried it.
They are planning a double blind trial but it sounds quite a way off - not at the approval or funding stage.
 
I chatted with a guy in 2017. Housebound and had a bit of anxiety. He got prescribed Risperdal, like Dr. Jay Goldstein did as well, and he's now working part time. I've not been surprised by the improvements we've seen due to Abilify, but we first need more research.
 
Multiple anecdotes is better than nothing. iT'S TERRIFIC. If they received funding then you might have reason to criticize for not getting answers. They don't have the funds and no one should have a sense of entitlement when they are not given the resources. I am thrilled about all their work on such limited resources.
 
I am currently taking 2.5 mg abilify,my M.e is very severe I have been bed bound for the last two-and-a-half years.
since taking Abilify I am able to talk more,
I'm able to have a bath using a bath lift,
I am able to go downstairs using a wheelchair and a stair lift,
I'm able to spend more time online I'm also able to watch half an hour of TV everyday ,day none of this would have been possible without Abilify,
it is definitely helping me.
 
One of the main issues currently that’s been talked about on PR is about how long the improvements on Abilify last. Some people have reported that after a couple months or more their improvements reduced, though it wasn’t clear if they were only taking Abilify monotherapy.

Others have combined Abilify with Celebrex or LDN and this combo has anecdotally shown to increase/extend its effects and prevent some tolerance. Will be interested in seeing how long this lasts.
 
I starting microdosing Abilify a week ago and holy shit - it works!

I absolutely can not believe how good I am feeling. For context I have severe ME, in bed 22hrs a day (otherwise on couch), need a powerchair to get from bed to toilet and carers for hygiene tasks. I have a history of medication sensitivity.

I am microdosing with 0.25mg at morning and lunch time. I also take the SNRI Effexor 75mg which my Neuro said works synergistically and increases the chance of it working. The only side effect so far is insomnia.

I had a powerchair fitting which I thought I was going to be in for the worst crash I've had all year. Thought I would need least 4-5 days of rest. Just 2 hours later I was already back to baseline. The next day I went for a big stroll and saw my relatives which usually I can only do the day after a saline infusion and 3 days of rest. Yesterday I spent 4hrs out of bed in a row (my powerchair has recline) . I was able to get out of bed this morning first thing and watch the rain and spend time with my mum. Usually I take 3-4hrs of aggressive fluid loading before I dare get out of bed.

It seems to make you recover from PEM very quickly but does not prevent it. My severe OI has improved slightly I am sitting up more frequently, earlier and for longer.

It seems almost to good to be true. My main concern is - does Abilify improve the underlying disease or does it make you feel good (a false sense of wellbeing?)
 
Wits_End said:
How on earth did you manage to get 0.25 mg? My caree is on 2.5 mg, and that's half of a TINY tablet.

I'm glad it appears to be helping you, although I still have reservations about what it might be concealing/smothering:
https://www.s4me.info/threads/aripiprazole-abilify.16972/page-2#post-290187
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We compounded it ourselves from 5mg tablets. My friend is about to try it and is getting it professionally compounded at the chemist. Our neuro tho said that my caretaker seemed capable as he makes me capsules all the time. It obviously not going to be perfect but since the dose is so tiny it shouldn't matter too much.
 
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