Discussion in 'General ME/CFS News' started by Andy, Jun 22, 2018.
I've not properly read through but the text looks to be the same as in the original link.
One of the possible boxes of "experience" is severe ME, but how would someone who has had severe ME have the social/professional network to have such references on close hand?
It does say "For additional questions, please contact Paul Newswanger via email at email@example.com or phone at 212 342 3005.", so there is a way to pose questions.
Less than a week to get an application in for anybody interested.
I plan on applying, just sorting out my referees!
Your point being?
Point? I have no point. I have cognitive dysfunction though
If they are looking for patients i could i suppose put down my doctor, who probably won't take a call from them, and not being in a medical profession i don't have relevant people to list as references. Also being unemployed quite a while my references from when i was working in an unrelated field have moved on a while ago or retired
The Microbe Discovery Project FB just posted this:
"CII need more applications for their ME/CFS Community Advisory Committee. Experience in epidemiology is a particularly important area of need. Please share widely and reach out to folks you know that have this experience. Open to people outside of the USA!!"
Well, I tried to get some confirmation on what references where wanted. I was able to find out unofficially that the intention wasn't to ask for professional references, although obviously some people who might still be able to work or who are only recently out of work might have useable professional references. The intention was more to obtain personal references, which potentially could be other patient advocates that you might have 'worked' with.
However, it's been over a week without any response, and the deadline has now passed, so it's a bit besides the point now. I'm afraid at the moment I'm less than impressed with CII's patient engagement efforts in this regard.
I also e-mailed and asked about that to no response
I did put down some personal references, so if thats what they wanted thats great but i agree that they are not making this easy
That's disappointing, I appreciate the effort you went to though!
I put in an application last week, but haven't yet had a response saying they're reviewing the applications yet. (only the automated reply)
Best of luck to everyone here who applied!
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