I have fibro on top of ME and some type of fibro pain. I also have pelvis lower back pain that started about 8-10 years ago, before ME. The pain happens during my sleep, very early morning, around 4-5 am. At the beginning it wasn’t too bad but now it is bad enough to wake me up. It comes and goes, it’s not everyday (thank god). It’s a weird pain, different from any other I have, which makes me think it’s not fibro pain. When I wake up, it really hurts and if I change position, it will hurt a lot more while I do it but afterwards, it will hurt less. So I take a few seconds to find my courage and turn. Then the pain lingers for about 45 minutes. Yesterday I had to get up, the pain was too much to fall back asleep. This is the first time it’s so bad. I have an appointment with a rhumatologist but I’d like to know tour experience with this illness if you have it.