Discussion in 'Other treatments' started by horizoncfs, Nov 9, 2017.
Does anyone have any thoughts or experiences? A doctor recently told me to try this DVD for my ME.
My opinion is that this type of therapy falls under 'junk science'. You might want to consider finding a new doctor - one who takes ME seriously.
This is like saying Diabetes could be defeated with that crap. If they do then I look forward to their disciplinary hearing...
The title alone makes me shudder: "Annie Hoppers Dynamic Neural Retraining System"... brrrr. Too many buzzwords.
I think these sorts of therapies can be situationally helpful for someone who is mild and suggestible. If you are generally a skeptic (only comforted by hard science) and dealing with extreme consequences of this illness, it's likely rubbish and possibly damaging when one cannot "think" and "practice" themselves into feeling better.
People are who more suggestible might find it more dangerous too. Some people can really try to commit to living according to the unreasonable approaches promoted by therapists like this, and get messed up by it. Some sort of simplified positive thinking may be good for some people, but even that can also lead to really distorted thinking.
I had a friend do this training and they instructed her to break contact with friends IRL and on the internet who were sick or were perpetuating her illness beliefs so she broke contact with several of us including me.
She told us in advance what she had been taught and why she was breaking contact (so it was not a surprise) but it still felt a bit strange and hurtful (even though that was not her intention). I later found out that her symptoms returned and she relapsed.
It's basically the "Lightning Process", repackaged and re-branded so she can cash in, instead of just telling others what she did.
Having said that, I do know a couple people who have found some benefit -- like 15-20% -- from some of these 'brain retraining' things, but also know others who crashed quite severely as a result.
So true. The world is full of people trying to commit themselves to other's truths. I don't bother debating with someone who wants to believe in certain things, for themselves. My sticking point comes when they try to force their belief on me. Of course, many sick people are vulnerable. That is why we need hard science to allow these alternatives to quietly exist for those that wish to seek them.
Wow...this sort of behavioral modification sounds like a cult influence. We are isolated enough. I'm sorry you lost a friend and I'm sorry your friend relapsed despite so much will and effort to get better.
As a neuroscientist, I particularly strongly object to the misuse of terms like "brain" and "neural" in this type of stuff. They are used as more sciencey sounding substitutes for mind and mental activity. The person writing this stuff hasn't the first idea what goes on in the brain and what its relevance might be to illness.
That's an extraordinary story, and it really takes this stuff out of the category of wallet-lightening fluff and into the category of dangerous brain-washing. That's what abusers do, isn't it? Isolate the person from any influences that could counter their narrative. Splitting and dividing people.
I feel so sad for this person. All that hope dashed, plus permanent harm done to their relationships with others.
Sadly it is also common with the Lightning process I gather. Someone who was on a forum many years back was "cured" by LP, and so broke contact with the group. I heard from her now and then, and on one occasion she was complaining about going out for a meal with friends, but they went for a half-hour walk first, which left her too shattered to enjoy the meal. So sad.
Someone from the other board (who is new and I do not know well) recently sent me a PM re: MCAS and was asking really good questions and I am always happy to help. Then he started telling me that a family member encouraged him to do Annie Hopper's DNRS training for MCAS/allergic reactions and was pushing heavily for me to try it.
I've been in remission from allergic reactions from MCAS for 17 months from IVIG but even if I was not, I do not endorse this training and feel it is very dangerous for people at risk of Anaphylaxis if it is telling them that they can stop the reactions using their mind/thoughts. I will carry Atarax and an EpiPen in my purse for the rest of my life b/c I know that I am still at risk. He could not hear me and felt the DNRS could cure these reactions so there was not much else I could say. But these trainings scare me (unless they are used an as adjunct to traditional medical treatments for MCAS/allergic reactions).
Yeah this is the problem with snake oil very well explained, people believe in it over science and can hurt or even kill themselves
I agree and I don't have any problem with people trying anything they want (if they are an adult and truly give informed consent) but I wish many of these "therapies" were used an an adjunct to real medical treatment *instead* of as the medical treatment itself.
Yes and promoted accordingly--as a coping tool--as well as not offered as a scammy pyramid-scheme overpriced hard-sell. That is just bullshit and predatory.
It can't work that way because snake oil sells itself as a miracle, otherwise people would stop buying into it.
As someone once said there is no such thing as alternative medicine, medication either works or it does not.
I didn't mean actual medications vs. people trying adjunct therapies as a coping tool (b/c some percent of people will benefit from it). If you are doing the adjunct therapy alone (for minor illness to cancer), it is dangerous if you are misled that it is a "cure" but if you are still doing your full treatment and doing something as an adjunct, then I feel this is within your right (if you are an adult and give informed consent). I hope that makes more sense!
These programmes seem to come in 57 varieties but all boil down to the same fundamental bullshit.
Ignore your symptoms and tell yourself you’re better.
I disagree, If a therapy works then you don't need an adjunct therapy.
57 you say?
Yeah this seems to be a common "treatment" to anything without a disease mechanism, ulcers were caused by stress not so long ago, the belief still persists. Heart disease as well
If only the psychosomatic camp had to adhere to the same ethical standards as regular medicine (imperfect as they are they are superior to assumed lies).
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