I don't think this will ever happen. In any country, ever. The sheer cost of that for the government would be unbearable so shifting that weight to relatives and quite unfortunately, letting people perish from the lack of care they need is what anyone in position of power will choose 100% of the time.
But it would be nice to imagine a sound-proofed, dark facility with 24/7 care tailored to everyone's needs. Last time I was in the hospital my carer had to bring a rice cooker, rice and quinoa and prepare me food in the room because the hospital literally doesn't expect people being only able to eat a limited diet.
I don't know what terms these different things come under/of the system so bear with me.
But there are also 2 aspects to this.
The idea of a 'dedicated inpatient facility' vs it seems from hearing them described in different articles or whatnot that if someone ends up in hospital there are wards that in an ideal ward mean someone ends up on the ward that 'covers that area' even if said ward isn't dedicated to/just for x.
And at the moment throughout the system there is no place existing to put people - putting aside the whole needing side room thing (that I guess could come with 'attaching' that responsibility to a particular ward and then resources they need to cover what traffic might come into them and the different needs).
And no staff/place where anyone might be at all trained or familiar and so get responsibility for overall management and saying 'yes that's what they need' rather than lots of people with different theories guessing or arguing in meetings or 'group-thinking' by it being 'multi-disciplinary' as if 'more people who don't know about ME/CFS put together in a group = more knowledge of ME/CFS'
I've also heard of clinics having, there is a term for it that isn't coming to me, responsibility for 'being the person called if someone on any ward comes in with it, but broke their leg, maybe developed a comorbidity or has something more related like feeding issues' (and said person needs to obviously have options to hand to be able to implement those things albeit whether they are 'adjustments' to std processes/side room or 'treatment')
It would be useful if that same (term I can't think of - something like 'outposting'?) could work for eg someone who was a nurse or OT being able to more directly sort the systems that aren't set up for our type of illness in their assessments (and where the assessments involve a level of health many don't have), like 'liaising' but with a bit more power for things like equipment etc. so that processes can be made to match (without involving that patient to have to unwittingly take on that 'making it match' by being the 'first we've seen who is ill enough to need that')
And that's partly because that is sort of 2-way in informing the HCP of how the disability is going and because of the idea that without adjusting life someone will get worse due to how ME/CFS works as well as because of 'not being able to access x, do y task'. Having that reporting of successful sorting of environment and equipment at home or at work (and include adjustments there) is sort of useful to contextualise if someone is getting better or worse medically/health-wise.,
And because accessing it in itself becoming a 'workload to the patient' and because of the nature of the illness and how ill we are in ways that aren't understood there being a believability issue (when not thru medical confirmation but a patient trying to say they need vs want) and a 'this takes longer than the time alotted/whats needed isn't fitting what we offer' (both in appointment having enough time to understand an issue they don't realise is 'more than fatigue', unusual issues like bartering one symptom/issue vs another - and not sounding 'marioantoinette', and in what they are allowed to offer on what basis 'fitting' with behind the scenes inaccurate descriptors etc sort of need that 'expert sign-off' but also the patient having someone who can think of these ME/CFS specific things helping them too - it is
hard thinking of what it is we will deal with in different situations, what might help vs hinder then relating it to things, whether off-the-shelf or custom) something only possible if they have support that can be trusted and have the knowledge (both of the illness and where it heads, and of how that particular services system works) to get through said system as that workload in itself affects a patients health and gives them an invidious choice (is it worth making oneself more ill doing said work to get x which if quick might help long term, but might end up never getting it therefore just = 'wasted work')
I agree with
@Hutan that this is where the interaction with other 'providers' like the odd very good charity set-up might be where this sort of thing is normally seen as fitting.
