Discussion in 'PsychoSocial ME/CFS Research' started by Tom Kindlon, Aug 9, 2018.
via Dr. Marc-Alexander Fluks
I wonder if anybody ever shows up at these things and puts the counter-view.
A pathetic collection of make-believe articles whose only purpose is to ensure employment for incompetents that couldn't make it in real medicine.
-I think it's important not to tar all with the same brush.
-In perusing the titles I found some that I thought looked like important, practical research into some serious problem.
-A lot have reasonable lines of inquiry but are muddled by babble.
-Unfortunately many do seem to be either pure theoretical babble or the kind of thing that would lead to oblique blaming of and imposition of psychological interventions upon people who are suffering from serious medical problems.
Maybe we need #NotAllPsychs
I looked at the ones where CFS was mentioned. Was not impressed.
The author thinks that getting patients to recall different things may lead to a clinical benefit. I am now doubting the author's sanity.
They seem to have discovered that patients have symptoms, unlike healthy people. I doubt that these results will advance our knowledge.
OD = orthostatic dysregulation. Apparently the name used in Japan for orthostatic intollerance (they mention CFS). With a lack of a control group the study isn't telling us anything about treatment so stop trying to suggest it does.
No control group, and no long term data. For all we know the patients (some of which had a CFS diagnosis) who went back to work collapsed shortly afterwards. The conclusion is not justified.
From the Per Fink group, about bodily distress disorder. They're not making any weird conclusions here, that seems to be planned for future studies. We are not really learning anything new here though. It's what you would expect to find in chronically ill people.
I'm with you there.
Can an individual (not physician / researcher) attend that conference? Or better yet, a group that can respond in some way?
I'm attending the Medical Psychiatric Alliance conference this fall and plotting.
MUS teams in U.K. blowing their own trumpets. Not good
I just noticed the National Center of Excellence for CFS/ME in Norway have added this conference in their overview of seminars/conferences/meetings about ME.
The upcoming ME-symposium at Stanford University is missing on their list.
They do however link to a coming seminar in Oslo for health personell about ME arranged by themselves and with themes as hypnosis and the biopsychosocial model.
(there is an ongoing petition against this center. Thread here)
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