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15 Nov 2017 | Invest in ME offering remote-linked robots to children with ME to help end isolation

Discussion in 'General ME/CFS News' started by Sasha, Nov 17, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    Read the rest: http://www.investinme.org/IIMER-Newslet-1711-02.shtml

    Note also:

     
  2. Sasha

    Sasha Senior Member (Voting Rights)

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    This is the droid we're looking for, apparently :android::

    Code:
    https://twitter.com/Invest_in_ME/status/931448766145712129
     
  3. Jo Best

    Jo Best Established Member (Voting Rights)

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    Hey @Sasha :) I think this is my first reply on Science for ME!
    No Isolation's tweet from Invest in ME Research Conference, London, June 2017...

     
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    Welcome, Jo! :balloons:
     
  5. Jo Best

    Jo Best Established Member (Voting Rights)

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    Thank you :thumbup:
     
  6. Amw66

    Amw66 Senior Member (Voting Rights)

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    There was a father whose son had an autoimmune disease trying hard to get this into Scottish Education ( radio coverage earlier this year). Change is not made easily within the Scottish system- he was having a helluva try though.
    It seems a great model for primary
     
  7. Valentijn

    Valentijn Not a moderator

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    Yes, public schools tend to be pretty horrible when it come to accommodating anything new or different. In the US, I think most teachers would immediately label it a "distraction" to the other children, and forbid it from even being trialed. Nice idea, but I think the bigger problem is elsewhere.
     
  8. Esther12

    Esther12 Senior Member (Voting Rights)

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    Great, now kids can get bullied without even needing to turn up to school!
     
    Invisible Woman and Valentijn like this.
  9. MErmaid

    MErmaid Senior Member (Voting Rights)

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    Last edited: Nov 18, 2017
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  10. Jo Best

    Jo Best Established Member (Voting Rights)

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    I reckon the child with ME will be the coolest kid in the class. :cool:

    While waiting for the biomedical research to hopefully lead to treatments, to filter through to paediatric care, many patients become adults who've missed years of experiences of childhood and adolescence, so I welcome this innovation from Norway.

    What matters most I guess, is what the youngsters themselves think of AV1 robot and if they'd like to trial it. There will be reluctance and possibly even resistance from some schools and local education authorities, but many that will welcome the opportunity to pilot creative use of technology and innovative measures to support the inclusion of students with chronic and disabling illness.

     
    Last edited: Nov 19, 2017
  11. Jo Best

    Jo Best Established Member (Voting Rights)

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    UPDATE 9 January 2018: http://www.investinme.org/IIMER-Newslet-1711-02.shtml

     
  12. Jo Best

    Jo Best Established Member (Voting Rights)

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    I noticed this tweet by this Assistant Principal/Head of Upper at one of the secondary schools taking part in the trial.
    Good to see senior management being directly involved from a teaching/classroom management perspective.

     
  13. Jo Best

    Jo Best Established Member (Voting Rights)

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    A short video (in English and with subtitles) from Norway about 16 year Emil's use of AV1.

     

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