Discussion in 'General ME/CFS News' started by Sasha, Nov 17, 2017.
Read the rest: http://www.investinme.org/IIMER-Newslet-1711-02.shtml
This is the droid we're looking for, apparently :
Hey @Sasha I think this is my first reply on Science for ME!
No Isolation's tweet from Invest in ME Research Conference, London, June 2017...
There was a father whose son had an autoimmune disease trying hard to get this into Scottish Education ( radio coverage earlier this year). Change is not made easily within the Scottish system- he was having a helluva try though.
It seems a great model for primary
Yes, public schools tend to be pretty horrible when it come to accommodating anything new or different. In the US, I think most teachers would immediately label it a "distraction" to the other children, and forbid it from even being trialed. Nice idea, but I think the bigger problem is elsewhere.
Great, now kids can get bullied without even needing to turn up to school!
I would much rather have something like this (that adults use).
That little white “toy” looks more like the pillsbury dough boy, and seems just as useless.
I reckon the child with ME will be the coolest kid in the class.
While waiting for the biomedical research to hopefully lead to treatments, to filter through to paediatric care, many patients become adults who've missed years of experiences of childhood and adolescence, so I welcome this innovation from Norway.
What matters most I guess, is what the youngsters themselves think of AV1 robot and if they'd like to trial it. There will be reluctance and possibly even resistance from some schools and local education authorities, but many that will welcome the opportunity to pilot creative use of technology and innovative measures to support the inclusion of students with chronic and disabling illness.
UPDATE 9 January 2018: http://www.investinme.org/IIMER-Newslet-1711-02.shtml
I noticed this tweet by this Assistant Principal/Head of Upper at one of the secondary schools taking part in the trial.
Good to see senior management being directly involved from a teaching/classroom management perspective.
A short video (in English and with subtitles) from Norway about 16 year Emil's use of AV1.
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