Discussion in 'General ME/CFS News' started by Sasha, Nov 17, 2017.
Read the rest: http://www.investinme.org/IIMER-Newslet-1711-02.shtml
This is the droid we're looking for, apparently :
Hey @Sasha I think this is my first reply on Science for ME!
No Isolation's tweet from Invest in ME Research Conference, London, June 2017...
There was a father whose son had an autoimmune disease trying hard to get this into Scottish Education ( radio coverage earlier this year). Change is not made easily within the Scottish system- he was having a helluva try though.
It seems a great model for primary
Yes, public schools tend to be pretty horrible when it come to accommodating anything new or different. In the US, I think most teachers would immediately label it a "distraction" to the other children, and forbid it from even being trialed. Nice idea, but I think the bigger problem is elsewhere.
Great, now kids can get bullied without even needing to turn up to school!
I would much rather have something like this (that adults use).
That little white “toy” looks more like the pillsbury dough boy, and seems just as useless.
I reckon the child with ME will be the coolest kid in the class.
While waiting for the biomedical research to hopefully lead to treatments, to filter through to paediatric care, many patients become adults who've missed years of experiences of childhood and adolescence, so I welcome this innovation from Norway.
What matters most I guess, is what the youngsters themselves think of AV1 robot and if they'd like to trial it. There will be reluctance and possibly even resistance from some schools and local education authorities, but many that will welcome the opportunity to pilot creative use of technology and innovative measures to support the inclusion of students with chronic and disabling illness.
UPDATE 9 January 2018: http://www.investinme.org/IIMER-Newslet-1711-02.shtml
I noticed this tweet by this Assistant Principal/Head of Upper at one of the secondary schools taking part in the trial.
Good to see senior management being directly involved from a teaching/classroom management perspective.
A short video (in English and with subtitles) from Norway about 16 year old Emil's use of AV1.
Related to the issue of isolation of children with ME: http://www.investinme.eu/IIMEC13-news-180209.shtml
Also, Channel 4 piece on use of AV1 for adults, interestingly, one is a paediatrician and the course was on genomics.
Sounds as though a start has been made in Scotland...
10 hrs ago
Classroom robot being trialled in East Lothian schools:
I think it is a great asset for primary where there is one teacher and one class - managing it in secondary would be a lot more challenging. The school would have to be very proactive, have a will to manage change, and our experience is that if there is not a ticky box to be ticked, then it will not happen.
To give you a flavour of the mindset, my friend's daughter has scoliosis. She is bang on 25% curvature which means she is not eligible for surgery and has to " learn to live with it". Our school is a lot more positive than others re resourcing for pupils with specific needs, and the child has missed most of a years schooling, and cannot sit for long periods - currently half a day is the most she can manage.
School sourced a chair ( a super douper office type thing that another pupil with " issues" had used) and called mum and daughter to school to see if it was viable. Very comfy, but very heavy and none had thought just how it was going to move from class to class! ( imagine teenagers in charge of a mobile chair in long corridors...)
Meanwhile, a mentally capable child is failed as she can only attend part time- and there is no joined up link to work for the classes she misses on the half days - in the C21st you can't make this up! She has now developed anxiety re school as she knows she cannot possibly keep up......many children being set up to fail.
That's awful and so unnecessary. Yes, 18 years into the 21st century, it's shameful really.
there was a series on BBC two about these robots and different potential applications
"In a television first, this series follows six British families with different needs as they welcome robots into their homes, from helping them get fit to easing the burden of care and from helping them understand the world to teaching them how to enjoy it. Each robot assists a family with a specific need, but one that millions of us can relate to. How will they react? Will the robots actually work? And will the families want to keep them or switch them off at the end of the experiment?"
mixed results......one in particular (as a care-bot for someone with MS) that was dependent on an internet connection!
About AV1 robot but not specifically about M.E...
Link to the article: http://news.trust.org/item/20180301132606-p5j47/?cid=social_20180301_75703347
Article on No Isolation website about one of the students trialling AV1 though IiME Research:
"Makayla’s Mum feels Robbie has improved Makayla’s day-to-day life, stating:
This is the first time in 8 years that I’ve had hope with Makayla’s education. Hearing the lessons coming from her bedroom I could have cried. We don’t have a normal life, but Robbie has given her some normality.
Makayla agreed with this saying:
Just the extra hours of being in class have helped me. Exam work has started for my GCSE’s, so Robbie’s helping me to catch up."
Separate names with a comma.