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“Understand your illness and your needs”: Assessment-informed patient education for people with multiple functional somatic syndromes, 2019, Pedersen

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Apr 27, 2019.

  1. Andy

    Andy Committee Member

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    Paywall, https://www.sciencedirect.com/science/article/pii/S0738399118307687
    Sci Hub, https://sci-hub.se/10.1016/j.pec.2019.04.016
     
    shak8, TiredSam, Woolie and 5 others like this.
  2. Hutan

    Hutan Moderator Staff Member

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    Last item of the BDS school schedule sums up this 'education exercise' really.
    Screen Shot 2019-04-27 at 9.50.02 PM.png
     
    Woolie, rvallee, DokaGirl and 4 others like this.
  3. strategist

    strategist Senior Member (Voting Rights)

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    So patients are told they must not worry... and then the authors measure how much patients worry and declare the treatment a success when patients do in fact give responses on questionnaire that indicate less worry.

    This is just an exercise in social control, isn't it?
     
    shak8, TiredSam, Atle and 19 others like this.
  4. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Perhaps they should do the reverse study - patient informed education for practitioners treating patients with MFSS...
     
    shak8, Sean, MEMarge and 10 others like this.
  5. duncan

    duncan Senior Member (Voting Rights)

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    Conversion Therapy for the diseased.
     
    shak8, MEMarge, ladycatlover and 6 others like this.
  6. Hutan

    Hutan Moderator Staff Member

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    Well, to be fair, there's a bit of statistical bias as well.

    So, the standard deviation on the 5-point Symptom scale was 0.7, and they talk about categories at the half-standard deviation and quarter-standard deviation points.

    So that should be (-)0.35 and (-)0.175. But instead the "quarter" point is (-)0.14, making it even easier to make an improvement. So, if there is a decrease of 0.14 or more, it's an improvement. But there has to be an increase of 0.35 points to qualify as a deterioration.

    (and of course the scale might not be linear, and the questions might be nonsensical - I don't know).

    Actually, if the same level of change is required for improvements and deteriorations, then the result is 25% reported an improvement, and 14% reported a deterioration, with 61% reporting no change.

    And yet, this result is spun as almost half the patients responding.

     
    shak8, Woolie, ladycatlover and 9 others like this.
  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Is that the new kid on the block? How many acronyms deep are we? 10? 20?

    Clearly suffering from SIAS: superfluous and irrelevant acronym syndrome.
     
    shak8, Woolie, ladycatlover and 10 others like this.
  8. NelliePledge

    NelliePledge Moderator Staff Member

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    FSS = FFS
     
    Keebird, Woolie, JemPD and 9 others like this.
  9. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    Like saying half the population are above median height?
     
  10. Sean

    Sean Senior Member (Voting Rights)

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    Woah there, sparky. I'm gonna have to see some evidence for that bold claim.

    ;)
     

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