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“Understand your illness and your needs”: Assessment-informed patient education for people with multiple functional somatic syndromes, 2019, Pedersen

Discussion in 'PsychoSocial ME/CFS Research' started by Andy, Apr 27, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    Paywall, https://www.sciencedirect.com/science/article/pii/S0738399118307687
    Sci Hub, https://sci-hub.se/10.1016/j.pec.2019.04.016
     
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  2. Hutan

    Hutan Moderator Staff Member

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    Last item of the BDS school schedule sums up this 'education exercise' really.
    Screen Shot 2019-04-27 at 9.50.02 PM.png
     
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  3. strategist

    strategist Senior Member (Voting Rights)

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    So patients are told they must not worry... and then the authors measure how much patients worry and declare the treatment a success when patients do in fact give responses on questionnaire that indicate less worry.

    This is just an exercise in social control, isn't it?
     
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  4. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Perhaps they should do the reverse study - patient informed education for practitioners treating patients with MFSS...
     
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  5. duncan

    duncan Senior Member (Voting Rights)

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    Conversion Therapy for the diseased.
     
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  6. Hutan

    Hutan Moderator Staff Member

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    Well, to be fair, there's a bit of statistical bias as well.

    So, the standard deviation on the 5-point Symptom scale was 0.7, and they talk about categories at the half-standard deviation and quarter-standard deviation points.

    So that should be (-)0.35 and (-)0.175. But instead the "quarter" point is (-)0.14, making it even easier to make an improvement. So, if there is a decrease of 0.14 or more, it's an improvement. But there has to be an increase of 0.35 points to qualify as a deterioration.

    (and of course the scale might not be linear, and the questions might be nonsensical - I don't know).

    Actually, if the same level of change is required for improvements and deteriorations, then the result is 25% reported an improvement, and 14% reported a deterioration, with 61% reporting no change.

    And yet, this result is spun as almost half the patients responding.

     
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  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Is that the new kid on the block? How many acronyms deep are we? 10? 20?

    Clearly suffering from SIAS: superfluous and irrelevant acronym syndrome.
     
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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    FSS = FFS
     
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  9. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    Like saying half the population are above median height?
     
  10. Sean

    Sean Senior Member (Voting Rights)

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    Woah there, sparky. I'm gonna have to see some evidence for that bold claim.

    ;)
     

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