Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up....
Hi. I just wanted to share an essay my dad wrote that got included in a recent healthrising post. The part written by my dad is quoted below:...
"Failings in the care of patients with Very Severe ME" by Dr Nigel Speight...
as a very rough tldr, for anybody wondering, of my very rough and probably wrong understanding of it, it works via a rituximab-like mechanism,...
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can cause a wide range of severity and functional impairment, leaving some...
Life-Threatening Malnutrition in Very Severe ME/CFS Helen Baxter, Nigel Speight, William Weir Healthcare (MDPI), Open access Abstract Very...
Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a rare disease with no known etiology. It affects 0.4% of the population,...
I think it would be useful for all of us, and perhaps for the NICE committee members, to gather together resources about severe and very severe...
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