very severe me

  1. Nightsong

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan Edwards Abstract: In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)...
    • Nightsong
    • Thread
    • guidelines hospitalisation jonathan edwards nutrition severe me/cfs very severe me
    • Replies: 147
    • Forum: ME/CFS research
  2. Yann04

    Resources for caregiving on the Very Severe end of Very Severe ME

    Hi, I usually can only use my phone for a couple minutes every week or so but sleep deprivation and an unknown allergic reaction gave me lots of adrenaline. I am using this to request help to compile a couple resources that will help my parents care for me. Obviously I am super thankful to...
  3. Sly Saint

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving adequate nutrition. Please avoid speculating about the health or other personal aspects of people mentioned. There is general discussion about severe...
  4. mango

    ‘Help Holger now’ video about a Swedish man with very severe ME

    Moderator note posts below have been moved from: https://www.s4me.info/threads/news-from-scandinavia.647/ "Help Holger now!" 13 minutes long video in Swedish about Holger who is very severely ill with ME. Made by his younger brother. (I haven't been able to watch the whole video yet, but...
    • mango
    • Thread
    • advocacy me/cfs sectioning severe sweden very severe me video
    • Replies: 87
    • Forum: General ME/CFS news
  5. T

    Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected"

    Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected" Guest Editors: Dr. Kenneth Friedman Laboratory Corporation of America Holdings, Burlington, United States Dr. Lucinda Bateman Bateman Horne Center, Salt Lake City, United States Prof...
    • Tom Kindlon
    • Thread
    • 2020 bateman de meirleir friedman healthcare me/cfs severe me special issue very severe me
    • Replies: 3
    • Forum: General ME/CFS news
  6. E

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst https://www.meassociation.org.uk/2019/08/very-severe-me-its-time-for-something-new-by-greg-crowhurst-16-august-2019/ This is the first of a series of blogs looking at pertinent issues regarding Very Severe ME and...
  7. MyalgicE

    Australian teenager tells story of threats and mistreatment

    A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of mistreatment, including two visits to psychiatric facilities. Right now she is in an awful situation, so sick she can’t tolerate people in the same room and...
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