switzerland

  1. John Mac

    Trial Report Effect on QoL of Therapeutic Plasmapheresis and Intravenous Immunoglobulins on a Population of ME/CFS Patients, 2025, Oesch-Regeni

    Full title: The Effect on Quality of Life of Therapeutic Plasmapheresis and Intravenous Immunoglobulins on a Population of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Elevated β-Adrenergic and M3-Muscarinic Receptor Antibodies—A Pilot Study...
  2. forestglip

    [Myalgic encephalomyelitis : etiopathogenesis, diagnosis and treatment], 2024, Scherrer et al

    [Myalgic encephalomyelitis : etiopathogenesis, diagnosis and treatment] (Full article in French) Robin Scherrer, Marian Galovic, Markus Gschwind, Octavia Sabin Published 17 July 2024 Abstract Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a neurological...
  3. Dolphin

    Review Interdisciplinary, collaborative D-A-CH consensus statement concerning the diagnostic and treatment of ME/CFS, 2024, Hoffmann et al [German]

    https://link.springer.com/article/10.1007/s00508-024-02372-y Interdisziplinäres, kollaboratives D-A-CH Konsensus-Statement zur Diagnostik und Behandlung von Myalgischer Enzephalomyelitis/Chronischem Fatigue-Syndrom Interdisciplinary, collaborative D-A-CH (Germany, Austria and Switzerland)...
  4. Dolphin

    Review An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond), 2024, Staub

    Free full text: https://www.ssph-journal.org/articles/10.3389/phrs.2024.1606966/full An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond) REVIEW Public Health Rev, 08 April 2024 Volume 45 - 2024 |...
  5. Dolphin

    Trial Report Identifying the mental health burden in ME/CFS patients in Switzerland: A pilot study, 2024, König et al

    https://www.sciencedirect.com/science/article/pii/S2405844024030627 Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study Rahel Susanne König, Daniel Henry Paris, Marc Sollberger, Rea Tschopp PII...
  6. Andy

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A preliminary survey among patients in Switzerland 2023 Tschopp et al

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multi-factorial systemic chronic debilitating disease of poorly understood etiology and limited systematic evidence. The questionnaire and interview-based survey included 169 ME/CFS patients from the Swiss ME/CFS association. The...
  7. Mij

    Detecting exhaustion with smart sportswear

    Researchers at ETH Zurich have developed an electronic yarn capable of precisely measuring how a person’s body moves. Integrated directly into sportswear or work clothing, the textile sensor predicts the wearer’s exhaustion level during physical exertion...
  8. Andy

    Social Stigma, Mental Health, Stress, and Health-Related Quality of Life in People with Long COVID 2023 Scholz et al

    Abstract A considerable amount of people who have been infected with SARS-CoV-2 experience ongoing symptoms, a condition termed long COVID. This study examined nuanced experiences of social stigma in people with long COVID and their associations with perceived stress, depressive symptoms...
  9. Wyva

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare utilization Abstract Post-COVID condition is prevalent in 10–35% of cases in outpatient settings, however a stratification of the duration and...
  10. Wyva

    Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID, 2022, Ziegler et al

    Abstract Background Long-term health consequences following acute SARS-CoV-2 infection, referred to as post-COVID-19 condition or Long COVID, are increasing, with population-based prevalence estimates for adults at around 20%. Persons affected by Long COVID report various health problems, yet...
  11. Sly Saint

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    Not yet recruiting Sarah Schiebler, University of Zurich Estimated Study Start Date : January 2022 Brief Summary: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a distinct disease entity with an estimated prevalence of 0.3-0.7% and more common in women (3:1 ratio). It can be...
  12. MSEsperanza

    News from Austria and Switzerland

    A thread for general news, events, articles etc from Austria and Switzerland.
  13. Wyva

    NLS Pharmaceutics Announces the Appointment of Eric Konofal, M.D., Ph.D. as Chief Scientific Officer (ME/CFS is mentioned)

    This is a press release from a small Swiss pharmaceutical company. I'm sharing it because the newly appointed chief scientific officer said: "Our lead product candidate, Quilience®, is an exciting technology that we discovered has partial orexin-2 binding activity, and therefore, offers...
  14. Andy

    Petition: A Swiss National Strategy for Long COVID and ME/CFS Patients

    Dear Federal Council, Dear Parliament, Dear FOPH, Dear Conference of Cantonal Directors of Public Health (GDK) and Medical Specialists Association FMH, Dear Cantonal and City Parliaments of all Swiss Cantons, A SWISS NATIONAL STRATEGY FOR LONG COVID AND ME/CFS PATIENTS ME/CFS Schweiz...
  15. Sly Saint

    Article (situation in Switzerland): The disease that nobody knows Dec 2019

    full article here https://www.en24.news/2019/12/the-disease-that-nobody-knows-tsuri-ch-mirsindtsuri.html do we have any contact/member in Switzerland?
  16. Andy

    World ME Alliance, was previously IAFME: International Alliance for ME

    Merged thread https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/
  17. C

    AFME decide Geneva is where their #millionsmissing contribution should be

    https://www.actionforme.org.uk/news/millions-missing-protest-coming-to-geneva/ Millions Missing Protest coming to Geneva April 10, 2018 Action for M.E. is supporting the Millions Missing campaign with our Millions Missing event in Geneva on Saturday 12 May – and you can get involved at home...
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