sf-36

The relationship of cytomegalovirus with physical functioning and health-related quality of life in older adults Frances A. Kirkham, Phu Sabei Shwe, Ekow Mensah & Chakravarthi Rajkumar Aims/introduction Cytomegalovirus (CMV) is a highly prevalent virus, known to be associated with...

I have set up this thread specifically to look at the way the questions are worded and whether they adequately cover the specific problems of fatiguability and PEM that limit whether an activity can be repeated and whether we avoid some activities in order to be able to do others, or in order to...

Abstract Background: Patient-reported outcome measures (PROMs) are often used in clinical research, but little is known about their performance as longitudinal outcomes. Methods: We used data from ASCEND, a large SPMS trial (n = 889), to investigate changes on the Short Form Health Survey 36...

Investigating the factors associated with meaningful improvement on the SF-36-PFS and exploring the appropriateness of this measure for young people with ME/CFS accessing an NHS specialist service: a prospective cohort study Daisy Gaunt; Amberly Brigden; Chris Metcalfe; Maria Loades; Esther...

This has come up in the context of the Research Strategy Working Group. I would be interested to know the views here.

Introduction: Many patients have prolonged symptoms after COVID-19 infection, which can affect patient quality of life (QOL). The aim of this study is to determine the quality of life in patients with long COVID, compared with healthy controls. Material and methods: The study was a prospective...

Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients Rekeland IG, Sørland K, Bruland O, Risa K, Alme K, Dahl O, Tronstad KJ, Mella O, Fluge Ø Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a...

Full title: Comparing Operationalized Approaches for Substantial Reduction of Functioning in Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Abstract A core criterion for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME) is a substantial reduction in functioning from...

[Posting simply because it's an assessment of the validity of SF-36 for another condition.] Abstract Background Exercise intolerance is widely known to be a major cardinal symptom in patients with heart failure (HF), but due to the recent coronavirus disease 2019 epidemic, it is still...

From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf

Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Randomized Controlled Trials https://www.mdpi.com/2077-0383/9/11/3463 eta:

Full title: Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36 https://www.mdpi.com/2227-9032/8/3/273

Free full text: https://purehost.bath.ac.uk/ws/portalfiles/portal/203914742/SLAM_Paper_7_SSAS_SF36_Psychometric_Properties_BCP_R2_Complete.pdf

Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods Amberly Brigden Roxanne M Parslow Daisy Gaunt Simon M Collin Andy Jones Esther Crawley...