sf-36

  1. Trish

    Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations

    I have set up this thread specifically to look at the way the questions are worded and whether they adequately cover the specific problems of fatiguability and PEM that limit whether an activity can be repeated and whether we avoid some activities in order to be able to do others, or in order to...
  2. Hutan

    The MSIS-29 and SF-36 as outcomes in secondary progressive MS trials, 2022, Strijbis et al

    Abstract Background: Patient-reported outcome measures (PROMs) are often used in clinical research, but little is known about their performance as longitudinal outcomes. Methods: We used data from ASCEND, a large SPMS trial (n = 889), to investigate changes on the Short Form Health Survey 36...
  3. SNT Gatchaman

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Investigating the factors associated with meaningful improvement on the SF-36-PFS and exploring the appropriateness of this measure for young people with ME/CFS accessing an NHS specialist service: a prospective cohort study Daisy Gaunt; Amberly Brigden; Chris Metcalfe; Maria Loades; Esther...
    • SNT Gatchaman
    • Thread
    • cfq chalder fatigue questionnaire children crawley loades minimal clinically important difference paediatric sf-36 young people
    • Replies: 29
    • Forum: ME/CFS research news
  4. Jonathan Edwards

    What do people think of SF-36?

    This has come up in the context of the Research Strategy Working Group. I would be interested to know the views here.
  5. Sly Saint

    What is the quality of life in patients with long COVID compared to a healthy control group? 2022, Liska et al

    Introduction: Many patients have prolonged symptoms after COVID-19 infection, which can affect patient quality of life (QOL). The aim of this study is to determine the quality of life in patients with long COVID, compared with healthy controls. Material and methods: The study was a prospective...
  6. SNT Gatchaman

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, 2022, Rekeland et al

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients Rekeland IG, Sørland K, Bruland O, Risa K, Alme K, Dahl O, Tronstad KJ, Mella O, Fluge Ø Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a...
    • SNT Gatchaman
    • Thread
    • actimetry depaul symptom questionnaire fitbit fluge mella norway sf-36 step count
    • Replies: 43
    • Forum: ME/CFS research
  7. Wyva

    Comparing Operationalized Approaches for Substantial Reduction of Functioning in CFS and ME, 2022, Wiedbusch and Jason

    Full title: Comparing Operationalized Approaches for Substantial Reduction of Functioning in Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Abstract A core criterion for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME) is a substantial reduction in functioning from...
    • Wyva
    • Thread
    • 2022 analysis chronic fatigue syndrome comparison depaul symptom questionnaire fatigue measurement leonard jason myalgic encephalomyelitis paper sf-36
    • Replies: 8
    • Forum: ME/CFS research
  8. Andy

    Usefulness of physical function sub-item of SF-36 survey to predict exercise intolerance in patients with heart failure, 2021, Ueno et al

    [Posting simply because it's an assessment of the validity of SF-36 for another condition.] Abstract Background Exercise intolerance is widely known to be a major cardinal symptom in patients with heart failure (HF), but due to the recent coronavirus disease 2019 epidemic, it is still...
  9. T

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
  10. Sly Saint

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in RCTs: 2020, Do-Young Kim et al

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Randomized Controlled Trials https://www.mdpi.com/2077-0383/9/11/3463 eta:
    • Sly Saint
    • Thread
    • 2020 cfq cis do-young kim korea me/cfs measurement paper review sf-36
    • Replies: 3
    • Forum: ME/CFS research
  11. John Mac

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    Full title: Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36 https://www.mdpi.com/2227-9032/8/3/273
    • John Mac
    • Thread
    • 2020 actigraphy activity levels cpet exercise physiology me/cfs monitoring paper severity sf-36 van campen
    • Replies: 31
    • Forum: ME/CFS research
  12. Dolphin

    Assessing Functioning in adolescents with Chronic Fatigue Syndrome: Psychometric properties and Factor Structure of SSAS & SF36 PF, 2020, Loades

    Free full text: https://purehost.bath.ac.uk/ws/portalfiles/portal/203914742/SLAM_Paper_7_SSAS_SF36_Psychometric_Properties_BCP_R2_Complete.pdf
  13. Sly Saint

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods Amberly Brigden Roxanne M Parslow Daisy Gaunt Simon M Collin Andy Jones Esther Crawley...
  14. T

    My e-letter on PACE Trial: More data demonstrating why the SF-36 PF threshold of 60+ is problematic

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