s4me

  1. Sly Saint

    Science for ME page on MEpedia

    Any chance someone could update the page?. https://me-pedia.org/wiki/Science_for_ME
  2. Science For ME

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020, and submission on substantive errors, August 2021

    Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline: ME/CFS: diagnosis and management The following posts were copied to the NICE template and submitted on 20th December 2020. A PDF version of the...
  3. Science For ME

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    Earlier this week we sent this letter to Dr Karla Soares-Weiser, the new editor of Cochrane, who in this article, https://www.cochrane.org/news/publication-cochrane-review-exercise-therapy-chronic-fatigue-syndrome, has promised Dear Dr Soares-Weiser, re: Publication of Cochrane Review...
  4. Andy

    Researcher Interactions Video: Science for ME Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019

    The Science for ME forum are delighted to talk to Dr Sadie Whittaker from Solve ME/CFS Initiative about Solve's work, in particular their patient registry, related app and biobank, as well as their Ramsay Award programme, that awards grants to fund much needed research into ME/CFS and which, at...
  5. Andy

    Trial By Error: S4ME Summary for Week of January 14th

    :) http://www.virology.ws/2019/01/22/trial-by-error-s4me-summary-for-week-of-january-14th/
  6. Science For ME

    S4ME Letter to Nice Concerning Chris Burton

    This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. Sorry I forgot to post it here earlier
  7. Science For ME

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are posting here so that it and the responses are available publicly. To: Dr Peter Barry Chair, NICE ME/CFS Guideline committee cc...
  8. Esther12

    Over 100,000 posts on S4ME already

    The forum has not been around for long, but seems to already be thriving. Thanks to all those who have contributed to the discussions - it's been great to be able to discuss with, and learn from, all of you. Particular thanks to those who helped set it up, and the committee and moderators who...
  9. Science For ME

    Science for ME PACE Briefing document

    This briefing was prepared by a Science for ME working group of patients, most with a background in science and mathematics. The authors, including Tom Kindlon, Sean Kirby and Graham McPhee, have published over twenty papers and letters of expert commentary on the PACE trial and related matters...
  10. Science For ME

    S4ME: Submission to the public review on Common Data Elements for ME/CFS: Concerns with the proposed measure of post-exertional malaise

    Science for ME are pleased to announce that we have today submitted another critique to the NIH/CDC review (following our earlier submission on the Chalder Fatigue Scale). All credit for this submission should go to the authors, and we are very grateful for all their hard work. The post below...
  11. Andy

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work. We have replicated the submission below...
  12. Andy

    Science for ME gains its 500th member!

    Delighted to highlight that, only six weeks after opening up to the public, we have hit the big 500! :party: In that time we have: Established the forums, as well as active Facebook and Twitter pages. Started work on our Science Library. Registered as a stakeholder for the NICE ME/CFS...
Back
Top Bottom