Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline: ME/CFS: diagnosis and management
The following posts were copied to the NICE template and submitted on 20th December 2020. A PDF version of the...
Earlier this week we sent this letter to Dr Karla Soares-Weiser, the new editor of Cochrane, who in this article, https://www.cochrane.org/news/publication-cochrane-review-exercise-therapy-chronic-fatigue-syndrome, has promised
Dear Dr Soares-Weiser,
re: Publication of Cochrane Review...
The Science for ME forum are delighted to talk to Dr Sadie Whittaker from Solve ME/CFS Initiative about Solve's work, in particular their patient registry, related app and biobank, as well as their Ramsay Award programme, that awards grants to fund much needed research into ME/CFS and which, at...
This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights.
Sorry I forgot to post it here earlier
This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights.
We are posting here so that it and the responses are available publicly.
To: Dr Peter Barry
Chair, NICE ME/CFS Guideline committee
cc...
The forum has not been around for long, but seems to already be thriving. Thanks to all those who have contributed to the discussions - it's been great to be able to discuss with, and learn from, all of you. Particular thanks to those who helped set it up, and the committee and moderators who...
This briefing was prepared by a Science for ME working group of patients, most with a background in science and mathematics. The authors, including Tom Kindlon, Sean Kirby and Graham McPhee, have published over twenty papers and letters of expert commentary on the PACE trial and related matters...
Science for ME are pleased to announce that we have today submitted another critique to the NIH/CDC review (following our earlier submission on the Chalder Fatigue Scale). All credit for this submission should go to the authors, and we are very grateful for all their hard work.
The post below...
Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work.
We have replicated the submission below...
Delighted to highlight that, only six weeks after opening up to the public, we have hit the big 500! :party:
In that time we have:
Established the forums, as well as active Facebook and Twitter pages.
Started work on our Science Library.
Registered as a stakeholder for the NICE ME/CFS...
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