recruitment

Hello, As part of my psychology Masters at Oxford Brookes University I'm conducting research into the motivations for complementary and alternative medicine use in those with chronic illness. One of the subcategories I'm particularly looking at are those with ME/CFS. If you're a UK resident...

Repeat Immunoadsorption Post Covid ME/CFS https://clinicaltrials.gov/ct2/show/NCT05629988 From Dr. Carmen Scheibenbogen's team at Charite University. Their summary: It's an observational study with no control group, so not rigorous. But after this study they want to do an RCT.

Men ages 39-65 needed for research study involving fibromyalgia and/or chronic fatigue syndrome The Neuroinflammation, Pain, and Fatigue Lab at UAB is currently recruiting men between the ages of 39-65 with Fibromyalgia and/or Chronic Fatigue Syndrome for a research study. This study combines...

Women ages 18-55 who have symptoms of Chronic Fatigue Syndrome needed for study The Neuroinflammation, Pain, and Fatigue Lab is looking for women ages 18-55 who have symptoms of Chronic Fatigue Syndrome, ME/CFS, for a 1.5-hour brain imaging study. We will obtain magnetic resonance images, MRI...

via healthrising https://www.healthrising.org/blog/2020/04/29/hydrogen-rich-water-chronic-fatigue-fibromyalgia-friedberg/

Moved from the News from Scandinavia thread Copied from a Chronic Illness Inclusion Facebook post, "My name is Hannah Lewin I am an MSc student studying Medical Anthropology at the University of Copenhagen. This September to December I will be conducting an ethnographic research project called...

full details https://www.cc.nih.gov/sites/nihinternet/files/internet-files/recruit/pdfs/20_fatigue.pdf (this pdf seems to have been created last year?)

"You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in people with post-exertional malaise/post-exertional symptom exacerbation (PEM/PESE)." https://www.surveymonkey.com/r/PEMPESESurveyStudy

I saw this in a SolveME Facebook post: Study Alert: Our friends at...

Indre Bileviciute-Ljungar, Swedish ME/CFS clinician-researcher and BPS proponent, is now recruiting patients to a post-covid-19 ie long covid study. It's an internet based multimodal rehabilitation program aiming to "prevent a negative course of the illness". On potential risks: The entities...

Full title: The ME-SH (Myalgic Encephalomyelitis in Stockholm-Harvard) Study: Structural Problems in Brainstem and Cervical Spine Cord in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(ME/CFS) - a Case-control Study Not yet recruiting...

Full title: Recruiting Adolescents With Chronic Fatigue Syndrome/Myalgic Encephalomyelitis to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial Open access, https://www.jmir.org/2020/8/e17768/

Moderator note: Please note: at this point only people from the UK will be eligible to participate in the study. However people from anywhere, with or without ME/CFS, can register their interest in receiving updates about the study. People who register will receive information about...

https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf

So this question comes from my involvement in the potential GWAS study in the UK, see this thread for details of that, but I think it's a good question for any study. Please post your ideas below.

Crawley's team churn another paper out. Open access at https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/s12874-019-0730-z

https://www.mailman.columbia.edu/research/center-infection-and-immunity/community#ResearchParticipation

http://batemanhornecenter.org/how-to-participate/

Quote from http://neuroimmune.cornell.edu/news/, link to recruitment flyer, http://neuroimmune.cornell.edu/wp-content/uploads/2018/07/WCM-Recruitment-Flyer.pdf

https://anzmes.org.nz/looking-for-participants-for-a-research-study-on-the-effects-of-exercise-at-anaerobic-threshold-on-post-exertional-malaise-in-individuals-with-me-cfs/