pwme

  1. Sly Saint

    Living with ME: Wellcome Collection

    Living with ME | Wellcome Collection Portraits and interviews by Jeremy Jeffs real photos of real pwME
  2. AAUoL

    Open RECRUITING: Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG

    Investigating the impact of ME/CFS and Long COVID on visual perception and sustained attention using Pupil Frequency Tagging and EEG (Leicester, UK) Individuals with Myalgic Encephalomyelitis / Chronic fatigue syndrome (ME/CFS) often report visual overload, difficulties filtering relevant from...
  3. Hutan

    Well-known, famous people with ME/CFS (public thread)

    Moderation note: Other relevant threads are: Well-known, famous people with ME/CFS Members Only - closed in January 2023 Well-known, famous people with fibromyalgia Well-known, famous people with Covid-19 and Long Covid Famous people diagnosed with neurological diseases
  4. Sly Saint

    People with ME featured on TV programmes

    Countryfile (last night). Inclusive farming. about 3/4s through the prog, a young woman with ME is featured (using a motorised wheelchair). https://www.bbc.co.uk/iplayer/episode/m001fqgg/countryfile-inclusive-farming
  5. Sly Saint

    Article in Times:GMB chief Tim Roache departs amid claims over conduct Apr 2020

    https://www.thetimes.co.uk/edition/news/gmb-chief-tim-roache-departs-amid-claims-over-conduct-8f5kh7rfk eta: also in Telegraph https://www.telegraph.co.uk/politics/2020/04/30/allegations-investigated-gmb-union-general-secretary-tim-roache/ eta2 and various other newspapers
  6. Gecko

    Davie Provan - ex-footballer with ME

    'All these years on, I still have a relapse if I do too much. I can’t go on a treadmill or go for a jog' https://www.thetimes.co.uk/article/all-these-years-on-i-still-have-a-relapse-if-i-do-too-much-i-cant-go-on-a-treadmill-or-go-for-a-jog-5gjb2h39n Don't have access to full article, but...
  7. Sly Saint

    Perrin Technique

    University College of Osteopathy - Raymond Perrin Nov 2019 Chronic Fatigue Syndrome/ME & Fibromyalgia Dates: 23 - 24 November 2019 Course leader: Dr Raymond Perrin Cost: £256 - £320 " The evidence to support the physical diagnostic criteria A summary of the findings of the clinical trials...
  8. H

    Mark Cavendish to take indefinite break from cycling after virus diagnosis

    https://www.theguardian.com/sport/2018/aug/29/mark-cavendish-to-take-indefinite-break-from-cycling-after-virus-diagnosis
  9. Webdog

    "Former Irish squash champ Rooney still haunted by being forced to quit" (due to CFS)

    http://connachttribune.ie/former-irish-squash-champ-rooney-still-haunted-by-being-forced-to-quit/
  10. Webdog

    Former basketball star Donald Watts discusses life with CFS

    Television interview with Donald Watts, who had to give up a basketball career due to Chronic Fatigue Syndrome. His recommendations are mostly lifestyle and dietary changes, such as giving up sugar and gluten. He also has a "team" of medical specialists, including a chiropractor. Also, an...
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