ppi

Abstract Background: Patient participation can contribute to establishing high-quality, sustainable health services. This study explored patient representatives’ perceptions of developing primary healthcare services to identify contextual factors that matter to their participation. Methods...

Given that it is becoming more the norm that research projects should have a PPI element, I'm curious to find out what, if any, barriers there might be to getting involved in Patient and Public Participation (PPI) aspects in research projects, and how you might think they could be addressed...

Using acid reflux drugs is linked to higher migraine risk, study warns (msn.com)

Copying from a post I made elsewhere, this idea arose in forum committee discussions about researchers' responsibilities to act ethically. ..What if we and/or patient organisations developed a charter for all ME/CFS (and ME/CFS-like LC) researchers or research studies? There could be a...

I've not been around much as I developed a big problem with my eyes, and had an ongoing problem with my throat. I'm cutting to the chase as it has taken me ages to piece things together and finally (have had my eyes tested etc, done a lot of trial and error for relief of both probs). So I have...

Maybe not exactly research methodology, but in a way :P Full title: Nothing About Us Without Us: Top 10 Research Priorities from Patients – A James Lind Alliance Project for Public and Patient Involvement (PPI) Background/Purpose: Patient and public involvement (PPI) is gaining increasing...

World Psychiatry Journal The lived experience of depression: a bottom-up review co-written by experts by experience and academics Paolo Fusar-Poli, Andrés Estradé, Giovanni Stanghellini, Cecilia Maria Esposito, René Rosfort, Milena Mancini, Peter Norman, Julieann Cullen, Miracle Adesina, Gema...

User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and usability of a systematic review update 2015 Authors Abstract Background This paper describes the structured methods used to involve patients, carers and health...

Abstract Background Patient and public involvement can improve study outcomes, but little data have been collected on why this might be. We investigated the impact of the Feasibility and Support to Timely Recruitment for Research (FAST-R) service, made up of trained patients and carers who...

Prilosec Why is this statement significant for patients with Lewy Body Disease? (LBD) Because this OTC signals the brain to turn off the proton pump in the stomach. Apparently for LBD patients, changing brain signals pushes the patients into the disease. My sister related this information to...