politics

From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/

The double invisibility of Long Covid in children Wild; MacLean; Nettleton; Hunt; Ziebland The Covid-19 pandemic has been dominated by discussions of mild and short-lasting cases or acutely serious or lethal forms of the disease; less attention has been paid to long-term Covid-19 symptoms...

Investigating the ‘Bolsonaro effect’ on the spread of the Covid-19 pandemic: an empirical analysis of observational data in Brazil Mireille Razafindrakoto; François Roubaud; Marta Reis Castilho; Valéria Pero; João Saboia Brazil counts among the countries the hardest hit by the Covid-19...

https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.729.2487&rep=rep1&type=pdf Too big to upload the PDF

Evaluation of science advice during the COVID-19 pandemic in Sweden Nele Brusselaers, David Steadson, Kelly Bjorklund, Sofia Breland, Jens Stilhoff Sörensen, Andrew Ewing, Sigurd Bergmann & Gunnar Steineck Abstract Sweden was well equipped to prevent the pandemic of COVID-19 from becoming...

the order of magnitude of the scale and scope of the problem is completely off. [perception and addressing of.] i posted this on a thread briefly then deleted it and reposting it. i don't know where to put it. that is not the best place. a few notes about human rights. WARNING: i am not...

Title : Medicine is Political Link : https://www.fast.ai/2021/10/12/medicine-political/ Article mentions ME/CFS and Covid as well as some other conditions. Opening paragraph :

"Today we are listening in on a fascinating conversation between Ivan Tyrrell - Co-founder of the Human Givens approach and director of Human Givens College - and Farhad Dalal, who is a UK-based psychotherapist and author. Farhad Dalal’s book - CBT: The Cognitive Behavioural Tsunami...

Some of what we face as pwME has naming that I wasn't aware of.... Essentially they amount to the relative insurmountability of an overwhelming blitzkrieg of BS: Bullshit asymmetry principle (Brandolini's Law) "Bullshit" on @Wikipedia: https://en.m.wikipedia.org/wiki/Bullshit?wprov=sfta1 Gish...

full article here https://www.echolive.ie/nationalnews/They-dont-know-the-reality-Artist-living-with-ME-says-candidates-need-to-listen-to-those-who-are-disabled-314a2093-c1c4-4584-b82c-f2860b290ab1-ds

full editorial here: https://jamanetwork.com/journals/jama/fullarticle/2756117 (note, article was retweeted by MS who is now 65th President and Chairman of the Board of the Academy of Consultation-Liaison Psychiatry)

https://www.independent.co.uk/voices/brexit-no-deal-nhs-epilepsy-bipolar-medicine-stockpiling-a8855131.html?amp See link for the rest of the article.

Open access, https://journals.sagepub.com/doi/full/10.1177/0003122412458509

" LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining viewers at a town screening of Unrest, an Oscar-shortlisted film by Harvard graduate Jen Brea which documents her life as a patient with Myalgic...

Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.

"M.E awareness: Liberal Democrats look to kick-start campaign on the hidden disease In a motion to Council on the 22nd March, Liberal Democrat Councillors are looking to kick-start a campaign to raise awareness on the often overlooked and hidden disease; Myalgic Encephalomyelitis, otherwise...

Not quite ME/CFS related but... A model of the way opinions spread reveals how propagandists use the scientific process against itself to secretly influence policy makers... https://www.technologyreview.com/s/610012/the-tricks-propagandists-use-to-beat-science/

I have just heard Jeremy Hunt not only is staying as health secretary but also gets social care Please someone tell me this isn't true. maybe they should give him work and pensions too he could finish us all off in one go.

"Health Secretary Jeremy Hunt has been brutally taken down by Ralf Small in 42 tweets – after he challenged the actor to a ‘double-dare’. Small accused Hunt of lying on Twitter about claims he masterminded the ‘largest expansion of mental health provision in Europe’ on the BBC’s Andrew Marr...