patient rights

I know no more than is presented here. Direct link to charter as shown above, https://docs.google.com/document/d/1XVeH6NHhvyCOZov6H0AzORKnPMlR0BKUPilIflVlQ0s/edit Link from this tweet,

I've come across a number of posts that mention the problems patients have with incorrect medical records, so thought it would be good to have a thread on how we can deal with this. In the UK we actually do have more rights to get action taken on correcting our personal data, including our...

Paul Wicks, Tessa Richards, Simon Denegri and Fiona Godlee: Patient's roles and rights in research Critical voices, including some patient advocates, have likened current approaches to patient involvement to “virtue signalling.”67 They point to an enterprise which remains skewed to serving the...

Germany: Restraining psychiatric patients requires court order https://www.dw.com/en/germany-restraining-psychiatric-patients-requires-court-order/a-44809053

Taken from the Grace Charity for ME (updated 2017) "This document was originally written in response to the Chief Medical Officer’s report in 2002 which triggered the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics, set up across the country. These clinics consist mainly...

One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage. It is interesting that this sociologist is unquestioningly buying into the assumption that those with contested illness are not really ill at all...