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patient reported outcome measures

  1. SNT Gatchaman
    Thread

    Refinement of post-COVID condition core symptoms, subtypes, determinants, and health impacts, 2024, Wang et al.

    Refinement of post-COVID condition core symptoms, subtypes, determinants, and health impacts: a cohort study integrating real-world data and...
    Thread by: SNT Gatchaman, Dec 12, 2024, 1 replies, in forum: Long Covid research
  2. pooriepoor91
    Thread

    Potential Mechanism of Fatigue Induction and Its Management by JAK Inhibitors in Inflammatory Rheumatic Diseases 2024, Anna Felis-Giemza et al

    Open Access: Full article: Potential Mechanism of Fatigue Induction and Its Management by JAK Inhibitors in Inflammatory Rheumatic Diseases...
    Thread by: pooriepoor91, Feb 13, 2024, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. SNT Gatchaman
    Thread

    Closed All eyes on PCS: analysis of the retinal microvasculature in patients with post-COVID syndrome—study protocol of 1 year prospective case–control study

    All eyes on PCS: analysis of the retinal microvasculature in patients with post-COVID syndrome—study protocol of a 1 year prospective case–control...
    Thread by: SNT Gatchaman, Dec 3, 2023, 5 replies, in forum: Recruitment into current ME/CFS research studies
  4. SNT Gatchaman
    Thread

    Substantial differences in perception of disease severity between post COVID-19 patients internists & psychiatrists or psychologists…, 2023, Ruzicka+

    Substantial differences in perception of disease severity between post COVID-19 patients, internists, and psychiatrists or psychologists: the...
    Thread by: SNT Gatchaman, Nov 14, 2023, 9 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Andy
    Thread

    Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability..., 2022, O'Brien et al

    Full title: Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people...
    Thread by: Andy, Mar 7, 2022, 7 replies, in forum: Long Covid research
  6. MSEsperanza
    Thread

    Fatigue, patient reported outcomes, and objective measurement of physical activity in systemic lupus erythematosus, 2016, Mahieu et al

    Mahieu MA, Ahn GE, Chmiel JS, Dunlop DD, Helenowski IB, Semanik P, Song J, Yount S, Chang RW, Ramsey-Goldman R. Fatigue, patient reported...
    Thread by: MSEsperanza, Feb 18, 2022, 4 replies, in forum: Other health news and research
  7. MSEsperanza
    Thread

    The importance of patient-reported outcomes: a call for their comprehensive integration in cardiovascular clinical trials, 2014, Anker et al

    Anker, S D, Agewall, S, Borggrefe M et al, 2014, The importance of patient-reported outcomes: a call for their comprehensive integration in...
    Thread by: MSEsperanza, Feb 18, 2022, 2 replies, in forum: Other health news and research
  8. MSEsperanza
    Thread

    Operationalising cognitive fatigability in multiple sclerosis [...], 2016, Harrison et al

    Harrison, A. M., das Nair, R., & Moss-Morris, R. (2016). Operationalising cognitive fatigability in multiple sclerosis: A Gordian knot that can be...
    Thread by: MSEsperanza, Aug 14, 2021, 2 replies, in forum: Other health news and research
  9. ME/CFS Skeptic
    Thread

    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    Abstract Background: Patient-reported outcome measures (PROMs) are influenced by psychosocial factors, but it is unknown whether we can influence...
    Thread by: ME/CFS Skeptic, Jun 30, 2021, 12 replies, in forum: Research methodology news and research
  10. Andy
    Thread

    Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for CFS, 2020,Tack

    Background Several randomized trials have reported that graded exercise therapy (GET) is an effective treatment for chronic fatigue syndrome...
    Thread by: Andy, Nov 25, 2020, 24 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. ME/CFS Skeptic
    Thread

    Let’s talk about pain catastrophizing measures: an item content analysis (2020) by Crombez et al.

    This seems to be an important article, hits many points and arguments that have been made repeatedly on this forum, namely that there is a problem...
    Thread by: ME/CFS Skeptic, Mar 7, 2020, 19 replies, in forum: Research methodology news and research
  12. Sly Saint
    Thread

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME):...
    Thread by: Sly Saint, Nov 10, 2019, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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