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patient registry

  1. Hutan
    Thread

    Patient registries

    I need to write something to support the development of an ME/CFS patient registry in my country. I'm interested to know what ME/CFS patient...
    Thread by: Hutan, Oct 4, 2023, 10 replies, in forum: Other research methodology topics
  2. Sly Saint
    Thread

    Join the Research Momentum with OMF’s StudyME

    from email Join the Research Momentum with OMF’s StudyME A Patient-Powered Participant Registry To help find a CURE faster. Do you want to...
    Thread by: Sly Saint, May 1, 2023, 15 replies, in forum: ME/CFS research news
  3. Andy
    Thread

    The Promise of Patient-Led Research Integration into Clinical Registries and Research

    Project Summary Background: While patients are increasingly engaged in clinical research and clinical registries in an advisory capacity,...
    Thread by: Andy, Jan 19, 2023, 12 replies, in forum: Other research methodology topics
  4. Sly Saint
    Thread

    The Facilitation of Clinical and Therapeutic Discoveries in ME/CFS and Related Diseases: A Protocol.., 2022, Ramiller et al

    The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and Related Diseases: A Protocol...
    Thread by: Sly Saint, Jul 13, 2022, 1 replies, in forum: ME/CFS research news
  5. MSEsperanza
    Thread

    The challenges in data integration - heterogeneity & complexity in clinical trials & patient registries of SLE, 2020, Le SueurL

    Le Sueur, H., Bruce, I. N., Geifman, N., & MASTERPLANS Consortium (2020). The challenges in data integration - heterogeneity and complexity in...
    Thread by: MSEsperanza, Jun 2, 2022, 0 replies, in forum: Research methodology news and research
  6. Sly Saint
    Thread

    Australia - Mason Foundation to investigate viability of ME/CFS Biobank - update - funding awarded for biobank

    " Mason Foundation ME CFS Biobank Survey The Mason Foundation is a charitable trust that supports medical and scientific research on myalgic...
    Thread by: Sly Saint, Apr 12, 2018, 42 replies, in forum: ME/CFS research news
  7. Andy
    Thread

    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    Preview of the project. The Solve ME/CFS Initiative (SMCI) is in the final stages of constructing a new state-of-the-art patient registry...
    Thread by: Andy, Jan 12, 2018, 54 replies, in forum: News from organisations
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