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patient registry

  1. MyalgicE
    Thread

    Australian biobank proposals sought

    The Mason Foundation are offering $1m over 5 years for a biobank or patient registry. The Mason Foundation are one of the biggest funders of...
    Thread by: MyalgicE, Apr 3, 2019, 0 replies, in forum: ME/CFS research news
  2. Andy
    Thread

    SMCI: National ME/CFS Patient Registry Meet the Community Guide – Brian Vastag

    The Solve ME/CFS Initiative (SMCI) National ME/CFS Patient Registry, developed in partnership with the Genetic Alliance and Platform for Engaging...
    Thread by: Andy, Apr 4, 2018, 2 replies, in forum: General ME/CFS news
  3. Andy
    Thread

    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    Preview of the project. The Solve ME/CFS Initiative (SMCI) is in the final stages of constructing a new state-of-the-art patient registry...
    Thread by: Andy, Jan 12, 2018, 20 replies, in forum: General ME/CFS news
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