outcomes

  1. Dolphin

    Review Selective outcome reporting in trials of behavioural health interventions in health psychology & behavioural medicine journals, 2025, Matvienko-Sikar

    https://www.tandfonline.com/doi/full/10.1080/17437199.2024.2367613 Selective outcome reporting in trials of behavioural health interventions in health psychology and behavioural medicine journals: a review Karen Matvienko-Sikar , Jen O'Shea , Stephen Kennedy , Siobhan D. Thomas , Kerry Avery ...
  2. Andy

    Getting it wrong most of the time? Comparing trialists’ choice of primary outcome with what patients and health professionals want, 2022, Treweek

    Abstract Background Randomised trials support improved decision-making through the data they collect. One important piece of data is the primary outcome — so called because it is what the investigators decide is the most important. Secondary outcomes provide additional information to support...
  3. Arvo

    Registration and primary outcome reporting in behavioral health trials, 2022, Taylor & Gorman

    Registration and primary outcome reporting in behavioral health trials | BMC Medical Research Methodology | Full Text (biomedcentral.com) Abstract Background Registration of research studies is designed to lock investigators into a data collection and analysis plan before a study starts and...
  4. Sly Saint

    Corrected proof: Treatment outcome in adults with CFS: a prospective study in England, CFS/ME National Outcomes Database, 2013, 2020, Crawley,White

    Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database E Crawley, S M Collin, P D White, K Rimes, J A C Sterne, M T May CFS/ME National Outcomes Database (originally published 2013)...
  5. Sly Saint

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME - Crawley et al Jan 2020

    Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L. Haywood, Alison Shaw...
  6. Sly Saint

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:
  7. Esther12

    Measurements of Recovery and Predictors of Outcome in an Untreated CFS Sample (2019) Thomas et al.

    This post and the following ones have been moved from this thread. I was just looking at this new paper from the author: Measurements of Recovery and Predictors of Outcome in an Untreated Chronic Fatigue Syndrome Sample...
  8. Andy

    Prediction of long-term outcome after cognitive behavioral therapy for chronic fatigue syndrome, 2019, Knoop et al

    Paywall, https://www.sciencedirect.com/science/article/pii/S0022399918307244?via%3Dihub Sci Hub, https://sci-hub.se/10.1016/j.jpsychores.2019.03.017
  9. Andy

    Depressive symptoms in adolescents with CFS: Are rates higher than in controls and do depressive symptoms affect outcome?, 2019, Chalder et al

    Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519838584?journalCode=ccpa Sci Hub, https://sci-hub.se/10.1177/1359104519838584
  10. Andy

    COMPare Trials, Ben Goldacre et al

    Two papers published today on the same subject, first: COMPare: a prospective cohort study correcting and monitoring 58 misreported trials in real time Background Discrepancies between pre-specified and reported outcomes are an important source of bias in trials. Despite legislation...
  11. A

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition. Questionnaire based, pre diagnosed Mild/ moderate but not housebound I don't know if any comorbidities (OI, EDS etc) have even been thought about I have not...
  12. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    Halp. Looking for a resource on this? I'll start the hunt through Phoenix Rising, but if someone has it handy, I'd really appreciate it.
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