organisation

A new US non-profit 501(c)(3) org has been announced: Long COVID Foundation (LCF): Website: https://www.longcfoundation.org Partners: @LongCovidAP @LCawarenessInt @React19org Long COVID Foundation @LongCFoundation We are very pleased to announce the official beginning of the “Long...

This thread is for a list of sub-national Norway ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Norwegian ME-association Austagder -- aust-agder@me-foreningen.no Norwegian ME-association...

This thread is for a list of sub-national US ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Massachusetts ME/CFS & FM Association - forum thread Minnesota ME/CFS Alliance New Jersey ME/CFS...

This thread is for a list of sub-national UK ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. Chester MESH self help group Leeds ME Network ME North East Norfolk and Suffolk ME Patient/Carer...

This thread is for a list of sub-national Canadian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. MECFS Canterbury - info@mecfscanterbury.nz (Canterbury) Complex Chronic Illness Support -...

This thread is for a list of sub-national Swedish ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. RME Dalarna Vastmanland RME Halland RME Jönköping RME Kalmar RME Kronoberg Blekinge RME...

This thread is for a list of sub-national Canadian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. AQEM – Association québécoise de l’encéphalomyélite myalgique - https://aqem.org/ -...

This thread is for a list of sub-national Australian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. ME/CFS/FM Support Association Queensland - http://www.mecfsfmq.org.au - mefmtba@bigpond.com...

Several threads have been merged ME-conferences in Sweden Oct 17th and 18th 2018 RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish. (I have translated the Swedish parts for this post)...

January 2020 newsletter, https://mailchi.mp/8debd4b3d287/supporting-biomedical-research-into-me-this-christmas-1235507

Apologies if it has been posted before. I've heard about it, but haven't seen this official statement from Cochrane about it. It's not dated, but listed on 3.rd place on the front page of Cochrane, so I gather the statement is new? Cochrane considering the repositioning of Chronic Fatigue...

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...