nhs website

  1. Sly Saint

    United Kingdom: NHS Lancashire and South Cumbria ME/CFS

    Hard to tell if it has been updated or not as it's quite difficult to navigate you have this CLMW Persistent Pain Service Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.lscft.nhs.uk/clmw-persistant-pain-service Then there is the Central Lancashire Moving Well Service...
  2. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    This thread has been formed by merging several threads This discussion has been split from this thread Edit November 2024, this thread has been renamed to reflect changes in areas served. UK campaign for better ME services in Suffolk and Norfolk Exactly DT, in 2009, we convincingly proved...
  3. Sly Saint

    United Kingdom: NHS Birmingham and Solihull ME/CFS

    link to the chronic fatigue syndrome service doesn't work. The policy for treatment download is from 2018. https://www.birminghamandsolihullccg.nhs.uk/your-health/treatment-policies/chronic-fatigue-syndrome (separate search brings up the Chronic Fatigue syndrome service website...
  4. Sly Saint

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    Note: There are two services in Oxfordshire dedicated to help patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): the OUH ME/CFS Service - and the Oxford Health ME/CFS Service. Website updated Dec 2021 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Service...
  5. Sly Saint

    NHS England MUS page updated June 2021

    https://www.nhs.uk/conditions/medically-unexplained-symptoms/ should this page not now say " ME/CFS" and link to the new NICE guideline and specify that if diagnosed with ME/CFS (or ME/CFS is suspected) people should seek advice on ME/CFS 'treatment'.
  6. Sly Saint

    NHS Scotland website not yet updated Nov 2021

    This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and then there is this Living with chronic fatigue Even in its mildest form, chronic fatigue can have a significant emotional and financial impact on...
  7. ProudActivist

    NHS England web pages on ME/CFS

    I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page. https://www.nhs.uk/conditions/multiple-sclerosis/ I thought I would check the CFS/ME page...
  8. C

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    https://www.england.nhs.uk/ourwork/clinical-policy/ltc/our-work-on-long-term-conditions/neurological/ I’m not sure if others will be pleased or exasperated. I’m bedridden 24/7 and identify with advanced , chronic, incapacitating neurological illness in terms of impact. My M.E. is neither...
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