nhs

  1. Dolphin

    Healthcare experiences of young people with CFS/ME in their own words, 2025, Watson & Segal

    https://adc.bmj.com/content/110/Suppl_1/A152 Young People’s Health Special Interest Group 7799 Healthcare experiences of young people with CFS/ME in their own words Hector Watson1, Terry Segal2 University Hospitals of Derby and Burton NHS Foundation Trust University College London Hospitals...
  2. R

    NHS GP practice Camphill Scotland misinformation

    Hey everyone! Just wanted to flag concern about an NHS GP practice called Camphill in Scotland, which has a huge array of ‘wellness’ resources on their website. Some are fine and I have no issue with them but others I find problematic and inappropriate. In these resources they say that Fibro...
  3. Sly Saint

    China to access NHS medical records of 500,000 patients

    China to access NHS medical records of 500,000 patients despite MI5 fears
  4. Wyva

    Understanding symptom clusters, diagnosis and healthcare experiences in ME/CFS and long COVID: a cross-sectional survey in the UK, 2025, Mansoubi et

    Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...
  5. Dolphin

    UK Long Covid Clinics

    This post has been copied and responses about the Nuffield program moved from the Paul Garner thread.
  6. Sly Saint

    £17m from Wellcome to analyse NHS talking therapy outcomes

    Ben Goldacre is heavily involved in this. Major investment to transform mental health treatment research and further develop secure NHS data platform Major investment to transform mental health treatment research and further develop secure NHS data platform — Nuffield Department of Primary...
  7. InitialConditions

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    7th National Neuropsychiatry Conference "Chronic Fatigue Syndrome (CFS) has long been recognised, and many different names and diagnostic criteria have been used to describe it. It remains an illness of uncertain cause. While fatigue is a very common presenting complaint in many settings...
  8. Sly Saint

    ‘Thanks, but no thanks’: The public's response to engagement with NHS Talking Therapies – a salutary tale? 2024 Scott

    Abstract Objectives The English NHS Talking Therapies has been hailed as a world leader in demonstrating outcomes, generating 1.76 million referrals in the year 2022–2023, with a claimed 49.9% recovery rate, but there has been a dearth of independent evaluations. Importantly, there have been no...
  9. Sly Saint

    'Distressing' unexplained symptoms that affect one in four people, NHS warns

    'Distressing' unexplained symptoms that affect one in four people, NHS warns
  10. Kiristar

    UK: Norfolk and Waveney ICB; ECCH ME/CFS Service

    Moved post Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one and GP surgery the other) and it's a nightmare. On pretty much everything Practitioners from each look where I live, decide its too far for them to...
  11. Sly Saint

    Change NHS : public involvement

    part of the 10 year reform plan for the NHS. Survey etc Change NHS
  12. Sly Saint

    Thousands miss out on vital asthma jabs as GPs don't know they exist

    Thousands miss out on vital asthma jabs as GPs don't know they exist
  13. Sly Saint

    Independent investigation of the NHS in England - Sept 2024

    Lord Darzi's report on the state of the National Health Service in England. report available here: Independent investigation of the NHS in England - GOV.UK (www.gov.uk)
  14. Sly Saint

    Ten-minute appointments: It’s not surprising patients have unfinished business with their GP

    Ten-minute appointments: It’s not surprising patients have unfinished business with their GP (msn.com)
  15. Sly Saint

    NHS Sussex Community NHS Foundation trust: Myalgic Encephalomyelitis (ME) and Chronic Fatigue Service (CFS)

    I've lived in Sussex the whole time I've had ME and I've only just found this. First of all its the old gripe, IE chronic fatigue used instead of chronic fatigue syndrome. I'm part way through watching the video and again its entitled living with chronic fatigue. Interesting that they say...
  16. C

    UK: Pathways to Work Commission Report July 2024

    Kendall launches blueprint for fundamental reform to change the DWP from a ‘Department of Welfare to a Department for Work’ Work and Pensions Secretary Liz Kendall will use landmark first speech to set out the Government’s plans to reverse dire labour market inheritance and drive up Britain’s...
  17. Trish

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    https://www.elaros.com/ ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where they can fill in PROMs, and access to these by clinicians. The initial aim, I think is for it to be used particularly for Long Covid clinics to track...
  18. Andy

    UK: Patient safety commissioner: “A relentless focus on NHS finance and productivity is failing patient safety”

    "Patients’ concerns about substandard care are the “canary in the coal mine” but too often go ignored, the patient safety commissioner, Henrietta Hughes, tells Erin Dean When thinking about the difference patients can make in improving care, Henrietta Hughes recalls a recent visit to a stroke...
  19. Nightsong

    United Kingdom: NHS Reasonable Adjustments Digital Flag

    Copied from this thread The NHS is apparently rolling out a "reasonable adjustment flag" to share details of physical, sensory, communication & other impairments across the NHS. Tweet: ("We have started to roll out the Reasonable Adjustments Digital flag across the NHS and publicly funded...
  20. C

    Thousands of foreign nurses a year leave UK to work abroad, Campbell, 2024

    The Guardian Thousands of foreign nurses a year leave UK to work abroad Denis Campbell "Almost 9,000 foreign nurses a year are leaving the UK to work abroad, amid a sudden surge in nurses quitting the already understaffed NHS for better-paid jobs elsewhere. The rise in nurses originally from...
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