https://adc.bmj.com/content/110/Suppl_1/A152
Young People’s Health Special Interest Group
7799 Healthcare experiences of young people with CFS/ME in their own words
Hector Watson1,
Terry Segal2
University Hospitals of Derby and Burton NHS Foundation Trust
University College London Hospitals...
Hey everyone!
Just wanted to flag concern about an NHS GP practice called Camphill in Scotland, which has a huge array of ‘wellness’ resources on their website. Some are fine and I have no issue with them but others I find problematic and inappropriate.
In these resources they say that Fibro...
Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK
Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...
Ben Goldacre is heavily involved in this.
Major investment to transform mental health treatment research and further develop secure NHS data platform
Major investment to transform mental health treatment research and further develop secure NHS data platform — Nuffield Department of Primary...
7th National Neuropsychiatry Conference
"Chronic Fatigue Syndrome (CFS) has long been recognised, and many different names and diagnostic criteria have been used to describe it. It remains an illness of uncertain cause. While fatigue is a very common presenting complaint in many settings...
Abstract
Objectives
The English NHS Talking Therapies has been hailed as a world leader in demonstrating outcomes, generating 1.76 million referrals in the year 2022–2023, with a claimed 49.9% recovery rate, but there has been a dearth of independent evaluations. Importantly, there have been no...
Moved post
Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one and GP surgery the other) and it's a nightmare. On pretty much everything Practitioners from each look where I live, decide its too far for them to...
Lord Darzi's report on the state of the National Health Service in England.
report available here:
Independent investigation of the NHS in England - GOV.UK (www.gov.uk)
I've lived in Sussex the whole time I've had ME and I've only just found this.
First of all its the old gripe, IE chronic fatigue used instead of chronic fatigue syndrome.
I'm part way through watching the video and again its entitled living with chronic fatigue.
Interesting that they say...
Kendall launches blueprint for fundamental reform to change the DWP from a ‘Department of Welfare to a Department for Work’
Work and Pensions Secretary Liz Kendall will use landmark first speech to set out the Government’s plans to reverse dire labour market inheritance and drive up Britain’s...
https://www.elaros.com/
ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where they can fill in PROMs, and access to these by clinicians.
The initial aim, I think is for it to be used particularly for Long Covid clinics to track...
"Patients’ concerns about substandard care are the “canary in the coal mine” but too often go ignored, the patient safety commissioner, Henrietta Hughes, tells Erin Dean
When thinking about the difference patients can make in improving care, Henrietta Hughes recalls a recent visit to a stroke...
Copied from this thread
The NHS is apparently rolling out a "reasonable adjustment flag" to share details of physical, sensory, communication & other impairments across the NHS.
Tweet:
("We have started to roll out the Reasonable Adjustments Digital flag across the NHS and publicly funded...
The Guardian
Thousands of foreign nurses a year leave UK to work abroad
Denis Campbell
"Almost 9,000 foreign nurses a year are leaving the UK to work abroad, amid a sudden surge in nurses quitting the already understaffed NHS for better-paid jobs elsewhere.
The rise in nurses originally from...
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