https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1534352/abstract
Background:
Post-exertional malaise (PEM) is a central feature of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and has emerged as a prominent feature of Long COVID. The optimal clinical...
(almost one year ago today)
Neuro Frontiers, 7/11/23: "NIH Study Identifies Cause for Long COVID Neurological Symptoms"
Dr. Charles Tuck interviews Dr. Avindra Nath, Clinical Director of NINDS
Nath: “…long COVID could very well be a number of syndromes under one umbrella with multiple...
This thread has been split from the NIH News thread
The thread on the paper for the NIH ME/CFS study which is the subject of this symposium is here: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al
Link to the recording of the symposium...
First news: https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/
Moderator note:
Posts on some specific parts of the study are in separate threads, for improved readability:
Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024...
Preprint
Background
A central feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is post exertional malaise (PEM), which is an acute worsening of symptoms after a physical, emotional and/or mental exertion. PEM is also a feature of Long COVID. Dynamic measures of PEM have...
Very interesting webinar on the neurological impact of Long COVID as well as recent findings - such as platelets and adhesion molecules leading to microthrombosis and vessel wall inflammation in the brain.
Mentions blood vessel occlusion of the inner ear as a possible explanation for 15% of LC...
Copied post: USA: Massachusetts ME/CFS & FM Association news
Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid
https://sites.google.com/massmecfs.org/2021annualmeeting
I have spent some time (probably far too much for my health) drafting and redrafting this letter with some helpful suggestions from members on a members only thread:
https://www.s4me.info/threads/draft-letter-to-the-authors-of-the-nih-pem-study-2020.17052/
The letter refers to a paper discussed...
Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5
https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full
Brian Vastag asked me to post this here as he isn’t on Science 4 ME.
Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...
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