nacul

  1. Dolphin

    Trial Report A Multimodal Magnetic Resonance Imaging Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Feasibility and Clinical Correlation, 2024, Kaur

    https://www.mdpi.com/1648-9144/60/8/1370 A Multimodal Magnetic Resonance Imaging Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Feasibility and Clinical Correlation Abstract Background/Objectives: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neurological...
  2. Sly Saint

    Evaluating fatigue in patients recovering from COVID-19: validation of the fatigue severity scale and single item screening questions 2022 Nacul et al

    Abstract Background Fatigue is a common symptom in hospitalized and non-hospitalized patients recovering from COVID-19, but no fatigue measurement scales or questions have been validated in these populations. The objective of this study was to perform validity assessments of the fatigue severity...
  3. Hutan

    Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

    https://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-370 Open access Luis Nacul, Dominic G O’Donovan, Eliana M Lacerda, Djordje Gveric, Kirstin Goldring, Alison Hall, Erinna Bowman & Derek Pheby Abstract Background Our aim, having previously investigated through a qualitative...
  4. Hutan

    Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS, 2010, Lacerda et al

    An old thread, but the idea of a post-mortem biobank is often discussed on the forum, and this study was linked in one such discussion. https://jcp.bmj.com/content/63/11/1032 Not open-access Sci-hub link: https://sci-hub.wf/10.1136/jcp.2010.082032 Abstract Background Myalgic...
  5. Kalliope

    Norway: ME Forening (ME Association)

    See also: 2018 Campaign week from the Norwegian ME Association to increase knowledge Merged thread Guest blogger for Norwegian ME Association: "Opted Out" The Norwegian ME Association offers its website for patients and others who wish to share their ME-related story in a blogpost. The...
  6. Andy

    Protocol Trial registration: Low-dose Naltrexone for Post-COVID Fatigue Syndrome, 2022, Luis Nacul, British Columbia Women's Hospital & Health Centre

    Clinical trial registration. There is a growing number of individuals who do not recover to previous levels of health and function following an acute infection by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), but rather develop what has been referred to as 'Long-COVID'...
  7. Sly Saint

    Brainstem Abnormalities in [ME/CFS]: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings, 2021, Nelson et al

    Nelson T, Zhang LX, Guo H, Nacul L, Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multisystem medical condition with heterogeneous symptom expression. Currently, there is no effective cure or treatment for the standard care of patients. A variety of ME/CFS...
  8. Sly Saint

    (CFS/ME) in adults: a qualitative study of perspectives from professional practice, 2010, Nacul et al

    Not new but thought it might be of interest. (the Peer Review report is also available , one of the reviewers is Chew-Graham) Abstract Background Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can cause profound and prolonged illness and disability, and poses significant problems...
  9. Sly Saint

    Prevalence of (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care, 2011, Lacerda,Nacul

    Not new but thought it should be here. " Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic fatigue syndrome (CFS) has been used to name a range of chronic conditions characterized by extreme fatigue and other disabling symptoms. Attempts to estimate the...
  10. Andy

    The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in [ME/CFS].., 2021, Malato et al

    Full title: The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: analysis of high-throughput genetic, epigenetic, and gene expression studies Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) show...
  11. Sly Saint

    Statistical challenges of investigating a disease with a complex diagnosis, 2021, Nacul et al

    View ORCID ProfileJoao Torrado Malato, View ORCID ProfileLuis Graca, View ORCID ProfileLuis Nacul, View ORCID ProfileEliana Mattos Lacerda, View ORCID ProfileNuno Sepulveda Preprint Abstract Given the absence of a disease-specific biomarker, there are more than 20 symptoms-based case...
  12. John Mac

    Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in ME/CFS, Lee, Lacerda, Nacul, Cliff et al, preprint 2021

    Full title: Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome https://www.medrxiv.org/content/10.1101/2021.01.06.20248486v1
  13. John Mac

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...
  14. Sly Saint

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    http://whri.org/calling-all-physicians-specialists-allied-health-clinical-operations-leads-and-other-clinicians/ eta: also here https://www.bcmj.org/blog/seeking-physicians-input-what-your-experience-myalgic-encephalomyelitis
  15. Sly Saint

    WHRI: Member spotlight: Dr. Luis Nacul

    http://whri.org/member-spotlight-dr-luis-nacul/
  16. Andy

    ME/FM Society of BC: Interview with Dr. Luis Nacul: Part One

    https://www.mefm.bc.ca/post/interview-with-dr-luis-nacul-part-one Part two here, https://www.mefm.bc.ca/post/interview-with-dr-luis-nacul-part-two
  17. Sly Saint

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995
  18. Sly Saint

    Circulating levels of GDF15 in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2019, Melvin, Lacerda, Nacul et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02153-6 eta: can someone explain the conclusions
  19. John Mac

    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-019-1468-2
  20. Cheshire

    ME/CFS as a hyper-regulated immune system driven by an interplay between regulatory T cells & chronic human herpesvirus infections (2019) Nacul et al.

    Nuno Sepúlveda, Jorge Carneiro, Eliana M. Lacerda and Luis C. Nacul https://www.frontiersin.org/articles/10.3389/fimmu.2019.02684/abstract Study made with the UK ME/CFS Biobank Full text not available yet, will be published soon.
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