nacul

  1. Dolphin

    Trial Report A Multimodal Magnetic Resonance Imaging Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Feasibility and Clinical Correlation, 2024, Kaur

    https://www.mdpi.com/1648-9144/60/8/1370 A Multimodal Magnetic Resonance Imaging Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Feasibility and Clinical Correlation Abstract Background/Objectives: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neurological...
    • Dolphin
    • Thread
    • aspartate bold canada fmri hand grip strength mr spectroscopy naa nacul
    • Replies: 7
    • Forum: ME/CFS research
  2. Sly Saint

    Evaluating fatigue in patients recovering from COVID-19: validation of the fatigue severity scale and single item screening questions 2022 Nacul et al

    Abstract Background Fatigue is a common symptom in hospitalized and non-hospitalized patients recovering from COVID-19, but no fatigue measurement scales or questions have been validated in these populations. The objective of this study was to perform validity assessments of the fatigue severity...
    • Sly Saint
    • Thread
    • fatigue fatigue measurement fatigue measurement scale fss measurement nacul
    • Replies: 1
    • Forum: Long Covid research
  3. Hutan

    Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

    https://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-370 Open access Luis Nacul, Dominic G O’Donovan, Eliana M Lacerda, Djordje Gveric, Kirstin Goldring, Alison Hall, Erinna Bowman & Derek Pheby Abstract Background Our aim, having previously investigated through a qualitative...
    • Hutan
    • Thread
    • biobank brain brain donation nacul pheby post-mortem
    • Replies: 8
    • Forum: ME/CFS research
  4. Hutan

    Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS, 2010, Lacerda et al

    An old thread, but the idea of a post-mortem biobank is often discussed on the forum, and this study was linked in one such discussion. https://jcp.bmj.com/content/63/11/1032 Not open-access Sci-hub link: https://sci-hub.wf/10.1136/jcp.2010.082032 Abstract Background Myalgic...
    • Hutan
    • Thread
    • biobank brain brain donation charles shepherd lacerda nacul peter spencer pheby post-mortem
    • Replies: 1
    • Forum: ME/CFS research
  5. Kalliope

    Norway: ME Forening (ME Association)

    See also: 2018 Campaign week from the Norwegian ME Association to increase knowledge Merged thread Guest blogger for Norwegian ME Association: "Opted Out" The Norwegian ME Association offers its website for patients and others who wish to share their ME-related story in a blogpost. The...
  6. Andy

    Protocol Trial registration: Low-dose Naltrexone for Post-COVID Fatigue Syndrome, 2022, Luis Nacul, British Columbia Women's Hospital & Health Centre

    Clinical trial registration. There is a growing number of individuals who do not recover to previous levels of health and function following an acute infection by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), but rather develop what has been referred to as 'Long-COVID'...
    • Andy
    • Thread
    • ldn long covid low-dose naltrexone me/cfs nacul naltrexone
    • Replies: 9
    • Forum: Long Covid research
  7. Sly Saint

    Brainstem Abnormalities in [ME/CFS]: A Scoping Review and Evaluation of Magnetic Resonance Imaging Findings, 2021, Nelson et al

    Nelson T, Zhang LX, Guo H, Nacul L, Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multisystem medical condition with heterogeneous symptom expression. Currently, there is no effective cure or treatment for the standard care of patients. A variety of ME/CFS...
  8. Sly Saint

    (CFS/ME) in adults: a qualitative study of perspectives from professional practice, 2010, Nacul et al

    Not new but thought it might be of interest. (the Peer Review report is also available , one of the reviewers is Chew-Graham) Abstract Background Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) can cause profound and prolonged illness and disability, and poses significant problems...
  9. Sly Saint

    Prevalence of (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care, 2011, Lacerda,Nacul

    Not new but thought it should be here. " Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic fatigue syndrome (CFS) has been used to name a range of chronic conditions characterized by extreme fatigue and other disabling symptoms. Attempts to estimate the...
    • Sly Saint
    • Thread
    • 2011 criteria diagnosis england epidemiology lacerda me/cfs nacul paper prevalence
    • Replies: 15
    • Forum: ME/CFS research
  10. Andy

    The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in [ME/CFS].., 2021, Malato et al

    Full title: The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: analysis of high-throughput genetic, epigenetic, and gene expression studies Abstract Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) show...
    • Andy
    • Thread
    • 2021 ace ace2 angiotensin castro-marrero me/cfs nacul paper sars-cov-2 scheibenbogen
    • Replies: 7
    • Forum: ME/CFS research
  11. Sly Saint

    Statistical challenges of investigating a disease with a complex diagnosis, 2021, Nacul et al

    View ORCID ProfileJoao Torrado Malato, View ORCID ProfileLuis Graca, View ORCID ProfileLuis Nacul, View ORCID ProfileEliana Mattos Lacerda, View ORCID ProfileNuno Sepulveda Preprint Abstract Given the absence of a disease-specific biomarker, there are more than 20 symptoms-based case...
    • Sly Saint
    • Thread
    • 2021 analysis diagnosis lacerda malato me/cfs nacul paper sepulveda
    • Replies: 10
    • Forum: ME/CFS research
  12. John Mac

    Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in ME/CFS, Lee, Lacerda, Nacul, Cliff et al, preprint 2021

    Full title: Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome https://www.medrxiv.org/content/10.1101/2021.01.06.20248486v1
    • John Mac
    • Thread
    • 2021 cliff ebv herpes virus hhv-6b hhv-7 lacerda lee me/cfs nacul paper viral reactivations
    • Replies: 15
    • Forum: ME/CFS research news
  13. John Mac

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...
    • John Mac
    • Thread
    • 2020 bergquist euromene europe guidelines lacerda me/cfs nacul pheby scheibenbogen
    • Replies: 54
    • Forum: General ME/CFS news
  14. Sly Saint

    Open Canada (BC) Calling all physicians, specialists, allied health, clinical operations leads, and other clinicians!July 2020

    http://whri.org/calling-all-physicians-specialists-allied-health-clinical-operations-leads-and-other-clinicians/ eta: also here https://www.bcmj.org/blog/seeking-physicians-input-what-your-experience-myalgic-encephalomyelitis
  15. Sly Saint

    WHRI: Member spotlight: Dr. Luis Nacul

    http://whri.org/member-spotlight-dr-luis-nacul/
  16. Andy

    ME/FM Society of BC: Interview with Dr. Luis Nacul: Part One

    https://www.mefm.bc.ca/post/interview-with-dr-luis-nacul-part-one Part two here, https://www.mefm.bc.ca/post/interview-with-dr-luis-nacul-part-two
  17. Sly Saint

    (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union - Strand, Nacul (EUROMENE) 2019

    full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995
    • Sly Saint
    • Thread
    • 2019 diagnosis euromene europe guidelines me/cfs nacul paper treatment
    • Replies: 34
    • Forum: ME/CFS research
  18. Sly Saint

    Circulating levels of GDF15 in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2019, Melvin, Lacerda, Nacul et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-02153-6 eta: can someone explain the conclusions
    • Sly Saint
    • Thread
    • 2019 blood cellular stress gdf15 lacerda me/cfs melvin nacul paper serum
    • Replies: 11
    • Forum: ME/CFS research
  19. John Mac

    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-019-1468-2
    • John Mac
    • Thread
    • 2019 etiology geraghty kingdon lacerda me/cfs multiple sclerosis nacul paper pathogenesis uk me/cfs biobank
    • Replies: 25
    • Forum: ME/CFS research
  20. Cheshire

    ME/CFS as a hyper-regulated immune system driven by an interplay between regulatory T cells & chronic human herpesvirus infections (2019) Nacul et al.

    Nuno Sepúlveda, Jorge Carneiro, Eliana M. Lacerda and Luis C. Nacul https://www.frontiersin.org/articles/10.3389/fimmu.2019.02684/abstract Study made with the UK ME/CFS Biobank Full text not available yet, will be published soon.
    • Cheshire
    • Thread
    • 2019 ebv herpesvirus me/cfs nacul paper sepulveda t-cells
    • Replies: 32
    • Forum: ME/CFS research
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