missed diagnosis

  1. Hutan

    Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses, 2017, Palacios, Komaroff et al

    Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses Natalia Palacios, Kathryn Fitzgerald, Anthony Komaroff, Alberto Ascherio ABSTRACT Background: The incidence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), the rates of...
    • Hutan
    • Thread
    • epidemiology incidence misdiagnosis missed diagnosis prevalence
    • Replies: 7
    • Forum: ME/CFS research
  2. Andy

    Functional neurological symptoms as initial presentation of Creutzfeldt-Jakob disease: case series 2022 Gómez-Mayordomo et al

    Abstract Background Functional Neurological Disorders (FND) are common in clinical practice. It is recognized that FND may present at onset or during the course of other neurological diseases (functional comorbidity). Cases We report a clinical series of three patients who initially presented...
  3. Andy

    Medically unexplained or not? Be aware of a somatic cause of Medically Unexplained Symptoms, 2022, Hilderink and van Vugt

    Abstract In 2 cases of men aged 26 and 55 respectively we illustrate the complexity of MUS patients since in both cases a somatic diagnosis was missed. The first patient presented with an inability to walk and persistent pain. Because of his symptoms he lost his job, had depressive moods and...
  4. Andy

    Revising a diagnosis of functional neurological disorder—a case report, 2020, Berry and Weithoff

    ABSTRACT We report a case of a 62-year-old female diagnosed with functional neurological disorder (FND), where the diagnosis was eventually revised to progressive supranuclear palsy 3 years after symptom onset. FND is a commonly encountered condition and can be diagnosed with a considerable...
  5. Sly Saint

    The Sun article - INVISIBLE ILLNESS The 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed (Aug 2019)

    Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. although they do say it's not just 'tiredness' they do seem to focus on it! at least they didn't ask Michael Sharpe for his opinion.. full article here...
    • Sly Saint
    • Thread
    • afme article charles shepherd chronic fatigue syndrome diagnosis invisible illness me/cfs missed diagnosis sarah jarvis
    • Replies: 8
    • Forum: General ME/CFS news
  6. Jenny TipsforME

    Periodic Paralysis, myotonia, channelopathy and ME

    My experiences, which I’ve discussed at length on The Other Forum, have led me to read up a bit about Periodic Paralysis. Reading more I feel like it might well have some biological connection to ME and/or POTS. The name is slightly misleading, it does involve symptoms other than paralysis...
  7. Woolie

    Auto-inflammatory diseases – What can they tell us about ME/CFS?

    I promised to write something about this group of diseases, which I came across during my own diagnostic journey. They are not the same as MECFS, but they have some interesting similarities, and may provide some clues as to what's going wrong in many of us. Background: The two main components...
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