ltse

What can we do to get deterioraters such as myself a suitable diagnosis that fully reflects their symptoms? It's become clear to me that there's no room for permanent damage being believed under an ME diagnosis, not even our own fact sheet says this exists. It all makes me feel very invalidated...

In addition to what I posted here (https://www.s4me.info/threads/a-thread-to-complain-about-pain-and-how-you-cope-with-it.25333/page-2#post-421722), I think people who experience LTSE deserve a different diagnosis. I define LTSE as symptom exacerbation lasting months, years, or indefinitely. At...