This is a really good article about the research they are doing. It's about old age, but I think many here would recognize a lot of it.
https://theconversation.com/loneliness-loss-and-regret-what-getting-old-really-feels-like-new-study-157731?utm_source=twitter&utm_medium=bylinetwitterbutton
Full title:
The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://www.mdpi.com/2227-9032/8/4/413
Jess Stafford called into the Radio 4 "You and Yours" Programme. The subject is Loneliness, and Jess was discussing her ME.
https://www.bbc.co.uk/sounds/play/m000bx1p
Starts at 15.04.
Pretty sure this must be the same Jessica Stafford who was the subject of this MEA piece back in July:
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