health services

  1. Wyva

    Understanding symptom clusters, diagnosis and healthcare experiences in ME/CFS and long COVID: a cross-sectional survey in the UK, 2025, Mansoubi et

    Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...
    • Wyva
    • Thread
    • charles shepherd diagnosis health services long covid me/cfs nhs survey symptoms united kingdom
    • Replies: 9
    • Forum: ME/CFS research
  2. Andy

    A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services, 2023, Melby and das Nair

    Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services Introduction People should have access to healthcare services that are effective, safe...
    • Andy
    • Thread
    • health services norway patient experience tjenesten og meg
    • Replies: 6
    • Forum: ME/CFS research
  3. rvallee

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.
  4. Andy

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post Video is now available https://youtu.be/D8ayxBSsk_M
    • Andy
    • Thread
    • brian hughes cbt get health services me/cfs nice guideline norwegian me association psychosomatic medicine webinar
    • Replies: 7
    • Forum: Resources
  5. Andy

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread David Tuller seems to be on a tour of the UK :) http://www.iomtoday.co.im/article.cfm?id=37206
    • Andy
    • Thread
    • david tuller health services isle of man long covid long covid clinic me clinics me/cfs
    • Replies: 62
    • Forum: UK clinics and doctors
  6. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  7. Kalliope

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    This thread has been split from the 'News from Scandinavia' thread Thought it might be useful to have a thread on news from Scandinavia. Hopefully it can become an archive and useful as a reference in future. Starting with the kickoff of one of the four research projects which recently got...
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