An initiative, funded by the Public Health Agency of Canada, has published guidelines for Post COVID-19 Condition.
The website is here. On that website is this list of the full set of recommendations. You can filter by the type of recommendation and drill down to details on how they developed...
Google translated from Czech to English. Some line breaks added.
INTRODUCTION
Patients with long-term physical problems that do not correspond to the findings of routine medical examinations constitute a significant portion of patients in general practitioners' offices and can be very...
I thought it could be worth setting up a separate thread on this.
These guidelines are separate to the NICE guidelines.
Here's some background information from the ME Advocates Ireland website:
https://meadvocatesireland.blogspot.com/2022/09/news-from-hse-re-clinical-guideline-for.html
The...
In August 2024 the National Board of Health and Welfare in Sweden (Socialstyrelsen), published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS. The guidelines are really unhelpful and has been heavily criticised, most of all...
Moved from News from Cochrane
https://iris.who.int/bitstream/handle/10665/378782/9789240097711-eng.pdf?sequence=1
page 8
The Technical Advisory Group (TAG) for Development of Best Practices for Clinical Trials was constituted through a public call for nominations.
16 names including Karla...
https://cep.health/clinical-products/fm-mecfs-pots/
Introduction
Fibromyalgia (FM), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and Postural Orthostatic Tachycardia Syndrome (POTS) are chronic health conditions. Accurate diagnosis and targeted management can improve the...
DynaMed is a clinical decision support resource from EBSCO. It provides evidence-based summaries of conditions with recommended actions. It has this guideline on 'Chronic Fatigue Syndrome' which was last updated on 11 December 2023...
Guidelines Recommending That Clinicians Advise Patients on Lifestyle Changes: A Popular but Questionable Approach to Improve Public Health
Minna Johansson, Amanda Niklasson, Loai Albarqouni, Karsten Juhl Jørgensen, Gordon Guyatt, Victor M. Montori...
The group will work to develop guidance about Long Covid and how psychologists contribute to rehabilitation, treatment and support.
Dr Faith Martin, one of the group leads, said:
"Around 2 million adults are known to be living with Long Covid in the UK. It is vital that we work with experts...
Socialstyrelsen, Sweden's National Board of Health and Welfare, published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS today.
As many of you already know, there were no national guidelines for ME in Sweden, so this is...
Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint)
@Jonathan Edwards
Abstract:
In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)...
Press release from Australian government announcing $1.1 million for the NHMRC to develop ME/CFS guidelines
https://www.emerge.org.au/news/media-release-backing-belief-with-better-support-for-people-with-chronic-fatigue/
OFFICIAL
MARK BUTLER MP
MINISTER FOR HEALTH AND AGED CARE
MEDIA...
Appraisal of Clinical Practice Guideline: National Institute for Health and Care Excellence NICE clinical practice guideline for myalgic encephalomyelitis or encephalopathy/chronic fatigue syndrome: diagnosis and management
Sarah F Tyson
Commentary. No abstract.
Link | PDF (Journal of...
From the ME Association —
The ME Association and patients with ME/CFS have been working with the College to produce a patient information leaflet that is being launched this afternoon in a talk by Professor Anton Krige and Dr Charles Shepherd: ME/CFS Implications for Anaesthesia. We hope this...
NICE Draft guidelines for Vitamin B12 Deficiency out for consultation
Guideline webpage : https://www.nice.org.uk/guidance/indevelopment/gid-ng10176
Expected publication date: 16 January 2024
Vitamin B12 deficiency in over 16s: diagnosis and management
Published 28 February 2023
This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally published in 2010. The Scottish Government has partially updated it to insert key recommendations from the NICE Guideline on ME/CFS published in October...
Copied post
The German Society for General and Family Medicine (DEGAM) published its new guideline on "Fatigue". One chapter is about ME/CFS.
https://www.degam.de/files/Inhalte/Leitlinien-Inhalte/Dokumente/DEGAM-S3-Leitlinien/053-002_Leitlinie Muedigkeit/Aktualisierung Dezember 2022/Langfassung...
Post copied and some subsequent posts moved from
United Kingdom: Action for ME (AfME) news
Consultation on Media Guidelines for M.E.
"This consultation seeks feedback on suggested media advice for journalists reporting on M.E. and developing a helpful handbook of best practices for...
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