germany

A housing project specifically for people with severe ME/CFS, including 24-hour assistance, is being planned in Neunkirchen-Seelscheid . A developer, in collaboration with Sozialhummel, plans to build barrier-free apartments in 53819 Neunkirchen-Seelscheid that are optimally tailored to the...

Determining the societal value of a prospective drug for ME/CFS in Germany Afschin Gandjour BACKGROUND Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) imposes a substantial societal and economic burden. The aim of this study is to ascertain the optimal level of public research and...

https://link.springer.com/article/10.1007/s00508-024-02372-y Interdisziplinäres, kollaboratives D-A-CH Konsensus-Statement zur Diagnostik und Behandlung von Myalgischer Enzephalomyelitis/Chronischem Fatigue-Syndrom Interdisciplinary, collaborative D-A-CH (Germany, Austria and Switzerland)...

The German Multicenter Registry for ME/CFS MECFS-R Hannah Hieber; Rafael Pricoco; Katrin Gerrer; Cornelia Heindrich; Katharina Wiehler; Lorenz L Mihatsch; Matthias Haegele; Daniela Schindler; Quirin Donath; Catharina Christa; Annika Grabbe; Alissa Kircher; Ariane Leone; Yvonne Mueller; Hannah...

All eyes on PCS: analysis of the retinal microvasculature in patients with post-COVID syndrome—study protocol of a 1 year prospective case–control study Kuchler, Timon; Hausinger, Renate; Braunisch, Matthias C.; Günthner, Roman; Wicklein, Rebecca; Knier, Benjamin; Bleidißel, Nathalie; Maier...

Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023 https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...

From their newsletter, DeepL translation: ME/CFS Research Foundation announces research funding strategy and appoints international scientific advisory board Hamburg, August 18, 2023 Since 2022, we have been advocating for more biomedical research on ME/CFS. We and many other organizations...

Scheibenbogen et al Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe chronic illness and patients with ME/CFS are often medically underserved in Germany and other countries. One contributing factor is health professionals’ lack of knowledge about epidemiology...

Long COVID: Costs for the German economy and health care and pension system Gandjour, Afschin Background Patients with acute COVID-19 can develop persistent symptoms (long/post COVID-19 syndrome). This study aimed to project the economic, health care, and pension costs due to long/post-COVID-19...

There have been quite a lot of improvements in the ME/CFS situation in Germany. There are now investment in research, the IQWiG report, political discussions on ME/CFS etc. I realise these are all still inadequate and that the situation for ME/CFS patients in Germany remains dire. But the pace...

Abstract Patients suffering from Long-COVID syndrome experience a variety of different symptoms on a physical, but also on a psychological and social level. Previous psychiatric conditions such as depression and anxiety have been identified as separate risk factors for developing Long-COVID...

The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and Cognitive Behavioral Therapy Are Safe and Effective Treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Mark Vink and Alexandra Vink-Niese...

Copied post The German Society for General and Family Medicine (DEGAM) published its new guideline on "Fatigue". One chapter is about ME/CFS. https://www.degam.de/files/Inhalte/Leitlinien-Inhalte/Dokumente/DEGAM-S3-Leitlinien/053-002_Leitlinie Muedigkeit/Aktualisierung Dezember 2022/Langfassung...

(Thread created at the request of a member) IQWIG The independent Institute for Quality and Efficiency in Health Care (Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen, IQWiG) examines the benefits and harms of medical interventions for patients...

This interview with Professor of psychiatry Martin Walter also discusses ME/CFS and the IQWiG draft report in Germany. The title and quotes below are translated with Google Translate. At Jena University Hospital, Martin Walter, head of the Department of Psychiatry and Psychotherapy there...

Risk factors for worsening of somatic symptom burden in a prospective cohort during the COVID-19 pandemic https://www.frontiersin.org/articles/10.3389/fpsyg.2022.1022203/full

Abstract Background : The SARS-CoV-2 pandemic has strained health systems worldwide, and infection numbers continue to rise. While previous data have already shown that many patients suffer from symptoms for months after an acute infection, data on risk factors and long-term outcomes are...

Long COVID symptoms in exposed and infected children, adolescents and their parents one year after SARS-CoV-2 infection: A prospective observational cohort study Summary Background Long COVID in children and adolescents remains poorly understood due to a lack of well-controlled studies with...

Change.org petition to fund and expedite BC-007 research BC007 NOW- Chance of a cure for millions of suffering people From the English description call on the German government to financially support the approval studies of the company Berlin Cures GmbH for the drug BC 007 and to remove...

Fatigue is recognized as one of the most commonly presented long-term complaints in individuals previously infected with SARS-CoV-2. This systematic review was performed to describe symptoms, etiology, possible risk factors related to post-COVID-19 fatigue and the therapeutic approaches used for...