The most popular questionnaire for PEM is the De-Paul Symptom Questionnaire, which, to be frank, is not the best, as it mostly focuses on fatigue after exertion and seems to flag an unlikely proportion of people with other illnesses having PEM.
It seems there isn’t much competition. The FUNCAP...
Posting on behalf of the developer
For more information and discussion of the FUNCAP survey itself, see
Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al
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Beta test: FUNCAP app for iPhone
If you would like to try the first...
I have set up this thread specifically to look at the way the questions are worded and whether they adequately cover the specific problems of fatiguability and PEM that limit whether an activity can be repeated and whether we avoid some activities in order to be able to do others, or in order to...
Now published. https://www.s4me.info/threads/assessing-functional-capacity-in-me-cfs-a-patient-informed-questionnaire-funcap-2024-sommerfelt-et-al.35464/page-3#post-538060
The discussion thread before the preprint was published and the preprint thread have been merged.
Discussion of the...
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