energy management

  1. Nightsong

    Managing Energy, and Shaping Care: Insights from Adults with [ME/CFS] Through Co-Production Workshops, 2025, Thornton+

    Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, debilitating condition characterised by severe fatigue that is not relieved by rest and is often exacerbated by physical or mental activity. A key challenge for individuals with ME/CFS is energy management and...
    • Nightsong
    • Thread
    • co-production energy management me/cfs pacing sanal-hayes
    • Replies: 7
    • Forum: ME/CFS research
  2. Trish

    Pacing up - why it's as harmful and unevidenced as GET

    I am very concerned that some ME/CFS clinicians, clinics and charities are recommending various versions of pacing up, and claiming it's NICE guidelines compliant because it's not GET and it is 'symptom contingent' therefore safe. I was asked by someone who recommends pacing up to explain my...
  3. Sly Saint

    UK ME Association documents on pacing

    Moved posts In light of recent discussions on 'pacing' and 'energy management', here https://www.s4me.info/threads/bias-misleading-information-and-lack-of-respect-for-alternative-views-have-distorted-perceptions-of-myalgic-encephalomyelitis-cfs-2017-goudsmit.32906/#post-470664 I've had a look...
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