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This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

Abstract Background Anxiety symptoms are elevated among people with joint hypermobility. The underlying neural mechanisms are attributed theoretically to effects of variant connective tissue on the precision of interoceptive representations contributing to emotions. Aim To investigate the...

Now published - link ***************** Preprint https://www.medrxiv.org/content/10.1101/2024.09.26.24314417v1 A Network Medicine Approach to Investigating ME/CFS Pathogenesis in Severely Ill Patients: A Pilot Study Li-Yuan Hung, Chan-Shuo Wu, Chia-Jung Chang, Peng Li, Kimberly Hicks, Becky...

Abstract Objectives: To investigate whether constitutional laxity of the connective tissues is more frequently present in adolescents with chronic fatigue syndrome (CFS) than in healthy controls. Increased joint hypermobility in patients with CFS has been previously described, as has lower blood...

Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic etiology. To identify genetic contributions to hEDS, whole exome sequencing was performed on families and a cohort of sporadic hEDS patients. A missense variant in...

Hereditary Connective Tissue Diseases and Risk of Post-Acute SARS-CoV-2 Bartlett, Maggie L.; Sova, Daniel; Jain, Mahim We completed a retrospective review of data collected by the JH-CROWN consortium based on ICD10 codes for a hospitalized cohort. The severity and prevalence of COVID-19 and...

Hemostatic abnormalities in patients with Ehlers–Danlos syndrome A. Artoni; A. Bassotti; M. Abbattista; B. Marinelli; A. Lecchi; F. Gianniello; M. Clerici; P. Bucciarelli; S. La Marca; F. Peyvandi; I. Martinelli Background: Ehlers–Danlos syndrome (EDS) includes a heterogeneous group of...

Characterization of bleeding symptoms in Ehlers–Danlos syndrome Mariia Kumskova; Gagan D. Flora; Janice Staber; Steven R. Lentz; Anil K. Chauhan Background Easy bruising is included as a major or minor criterion for the classification of multiple types of Ehlers–Danlos syndrome (EDS). Despite a...

Ehlers-Danlos Syndrome: Germany treatment for Hastings teen - ‘If we don’t go, I one hundred per cent believe Jaimee will die’

High overlap in patients diagnosed with hypermobile Ehlers-Danlos syndrome or hypermobile spectrum disorders with fibromyalgia and 40 self-reported symptoms and comorbidities 2023, Fairweather et al Background: Joint pain is a common symptom in patients with hypermobile Ehlers-Danlos Syndrome...

Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports...

I came across this. COVID-19 and Ehlers-Danlos Syndrome: The Dangers of the Spike Protein of SARS-CoV-2 This article describes the effect of the spike protein from both covid and the covid vaccine on those with Ehlers Danlos syndrome. CONCLUSION Regarding SARS-CoV-2 infection and vaccine...

Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports Their Categorization as a Single Entity with Involvement of Extracellular Matrix Degrading and Proinflammatory Pathomechanisms Abstract Hypermobile...

https://www.statnews.com/2022/12/12/ehlers-danlos-syndrome-patients-turned-researchers/

For years, Suffolk teenager Katy Shaw's symptoms were either misdiagnosed or not believed. Eventually she was found to have a genetic disorder that caused constant dizziness, fainting and pain when standing. After a spell in hospital, she began her A-levels two months late and using a...

Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be...

Abstract The purpose was to study self-reported chronic pain and fatigue symptoms among adults with molecularly verified Loeys–Dietz and vascular Ehlers–Danlos syndrome using a cross-sectional questionnaire design. Seventy adults were invited through a National Resource Centre for Rare...

This came into my mailbox. i thought i’d share. Full text here . Interestingly the authors are affiliated to King’s College in London. Abstract Background: There have been previous reports of enhanced sympathoexcitation in autism spectrum disorder (ASD). However, there has been no formal...

The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing Than Patients without Hypermobility: A Case Control Study Linda M.C. van Campen Stichting CardioZorg, Planetenweg 5, 2132 HN...

Abstract Background. The hypermobile type of Ehlers–Danlos syndrome (hEDS) is likely the most common hereditary disorder of connective tissue mainly characterized by joint hypermobility. Patients with hEDS suffer joint pain, in particular low back pain, commonly resistant to drug therapy. The...