I've written an overview of the problems with Postural Orthostatic Tachycardia Syndrome (POTS) criteria.
https://mecfsskeptic.com/the-problems-with-pots/
A brief summary of the arguments looks like this:
A heart rate increase of 30 bpm (or 40 bpm in 12–19-year-olds) is far from abnormal. Many...
Heterogeneity in Measures of Illness among Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Not Explained by Clinical Practice: A Study in Seven U.S. Specialty Clinics
Elizabeth R. Unger on behalf of the MCAM Study Group
Jin-Mann S. Lin 1, Yang Chen 1, Monica E. Cornelius 1...
https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2314409
Research Article
Can a consensus occur on a research case definition for ME/CFS?
Leonard A. Jason,
Suvetha Ravichandran
&
Aiden Rathmann
Received 05 Dec 2023, Accepted 11 Jan 2024, Published online: 13 Feb 2024...
Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection
IMPORTANCE
SARS-CoV-2 infection is associated with persistent, relapsing, or new symptoms or other health effects occurring after acute infection, termed postacute sequelae of SARS-CoV-2 infection (PASC), also known as...
In the thread about translating the ICC into Hindi, there was this claim:
"International consensus criteria (ICC) originally published in English (ICC-E) is a valid and reliable tool for identifying cases of ME."
How are they validating that claim? There is no clinical test for ME to verify...
Composite reference standards are used to evaluate the accuracy of a new test in the absence of a perfect reference test. A composite reference standard defines a fixed, transparent rule to classify subjects into disease positive and disease negative groups based on existing imperfect tests. The...
Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway
Abstract:
Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...
Introduction
As of February 2023, there have been approximately 759 million confirmed cases of COVID-19 infections globally1 and some individuals have experienced persistent symptoms, such as fatigue and shortness of breath, after recovering from the initial illness from COVID-19. The UK...
ABSTRACT
Introduction
The diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is generally reached based on meeting the criteria of a case definition and eliminating other conditions that could be causing the patient’s symptoms. Investigators in the ME/CFS field are...
Objectives
The Institute of Medicine (IOM 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington: The National Academies Press) suggested new criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), which requires an endorsement of...
Abstract
In 2015, the American Institute of Medicine, now called the National Academy of Medicine, (IOM/NAM) proposed new diagnostic criteria for both Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and a new label: Systemic Exertion Intolerance Disease (SEID). This study aimed to...
Webinar: “Implications Of ME/CFS Case Definitions For Long Covid”
Guest speaker: Dr. Leonard Jason
Wednesday, March 16, 2022, 4 p.m. EDT (1 p.m. PDT, 8 p.m. GMT)
Full announcement - https://usawg.wordpress.com/2022/02/26/special-event/
Click here to register
Abstract
Purpose
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a variety of symptoms including post-exertional malaise, unrefreshing sleep, and cognitive impairment. A variety of case definitions (e.g., the Canadian Consensus Criteria (CCC), the...
Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022.
Principal supervisor is prof. Wyller.
Summary
Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...
Abstract
Fibromyalgia developed in the 1950s from a substrate of difficult to explain regional and widespread pain mixed with symptoms of psychosocial distress. Controversies regarding psychological issues were common. Multiple criteria arose to define the disorder, but each identified a...
"In this series, I dig a little deeper into the meaning of psychology-related terms… but not this week. Instead, we’ll take a look at ME/CFS, and why it’s absolutely not all in someone’s head."
https://mentalhealthathome.org/2021/07/09/what-is-me-cfs/
Abstract
Objective
To develop and implement criteria for description of post COVID syndrome based on analysis of patients presenting for evaluation at Mayo Clinic Rochester between November 2019 and August 2020.
Methods
A total of 465 patients with a history of testing positive for COVID-19...
Article about the new diagnostic criteria for fibromyalgia
Dagens Medisin had an article about the new diagnostic criteria for fibromyalgia, with comments from Egil Fors who have been involved in some ME/CFS research at NTNU...
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