criteria

Influential studies from the VA St. Louis take a broad view of long Covid. Not every expert agrees with the approach. https://undark.org/2024/07/25/long-covid-clash-of-definition-study-design/

Wasn't sure where to put this but I wanted to note the following: It's not known whether or when the ME Association plans to update its Articles of Association to reflect a change in its objectives...

In the thread about translating the ICC into Hindi, there was this claim: "International consensus criteria (ICC) originally published in English (ICC-E) is a valid and reliable tool for identifying cases of ME." How are they validating that claim? There is no clinical test for ME to verify...

Introduction As of February 2023, there have been approximately 759 million confirmed cases of COVID-19 infections globally1 and some individuals have experienced persistent symptoms, such as fatigue and shortness of breath, after recovering from the initial illness from COVID-19. The UK...

In addition to what I posted here (https://www.s4me.info/threads/a-thread-to-complain-about-pain-and-how-you-cope-with-it.25333/page-2#post-421722), I think people who experience LTSE deserve a different diagnosis. I define LTSE as symptom exacerbation lasting months, years, or indefinitely. At...

Not new but thought it should be here. " Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic fatigue syndrome (CFS) has been used to name a range of chronic conditions characterized by extreme fatigue and other disabling symptoms. Attempts to estimate the...

Paywall, https://www.bmj.com/content/371/bmj.m3745 Sci hub, https://sci-hub.se/10.1136/bmj.m3745

There are several diagnostic criteria for ME which complicates research and hinders the development of safe and effective treatments. Broad criteria for ME results in misdiagnosis and incorrect treatment. Researchers need stricter criteria [1]. Misdiagnosis is common, 40% of patients diagnosed...

https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1757809

ME/SEID would be definitionally appropriate on literal terminological grounds, if associated with superior diagnostic criteria, such as the CCC or ICC. This would appear to be an improvement vs stigma, accurate understanding etc. for NICE purposes and actually offer a solid measure to adopt...

http://www.virology.ws/2019/12/31/trial-by-error-my-2011-exchange-with-white-et-al-about-case-definition/

https://www.meaction.net/2019/11/14/demystifying-the-diagnostic-criteria/

Moderator note: This post has been copied and subsequent posts moved from this thread: Concerns about craniocervical instability surgery in ME/CFS _________________________________ Chronic Fatigue Syndrome is a such a vague diagnosis that it can cover many things since fatigue is such a common...

White astounding us with his insight into ME..... Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/jep.13240 Sci hub, https://sci-hub.se/10.1111/jep.13240

https://link.springer.com/article/10.1007/s11926-019-0823-z

I hope I’m not duplicating a thread - I’ve searched but can’t find anything on this subject. “On April 9, 2019, ME advocates Eileen Holderman and Gabby Klein sent an open letter to the Secretary of the U.S. Department of Health and Human Services (HHS), Alex M. Azar II. “The letter urges...

From Leonard Jason's FB wall:

I think I remember reading a UK study that characterized patients by NICE, Oxford, and Fukuda and gave the prevalence of each. Does anyone remember that study and if so, could you share the study name or link? Thanks in advance

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/fulltext (Paywall) This commentary presents a simplified way of making the diagnosis of myalgic...

Paywalled at: https://onlinelibrary.wiley.com/doi/full/10.1111/bioe.12559 Full access at: http://sci-hub.tw/10.1111/bioe.12559