common data elements

https://www.openaccessgovernment.org/article/common-data-elements-to-advance-me-cfs-research/189538/ Common data elements to advance ME/CFS research First Published: 11th March 2025 Last Modified: 11th March 2025 Standardizing data collection in ME/CFS research through Common Data Elements...

Myalgic Encephalomyelitis—Chronic Fatigue Syndrome Common Data Element item content analysis Mary D. Slavin; Hannah M. Bailey; Emily J. Hickey; Ananya Vasudevan; Aileen Ledingham; Linda Tannenbaum; Lucinda Bateman; David L. Kaufman; Daniel L. Peterson; Ilene S. Ruhoy; David M. Systrom; Donna...

Abstract Aims The Gulf War Illness programs (GWI) of the United States Department of Veteran Affairs and the Department of Defense Congressionally Directed Medical Research Program collaborated with experts to develop Common Data Elements (CDEs) to standardize and systematically collect...

https://www.preprints.org/manuscript/202009.0744/v1

The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) Authors Derek F.H. Pheby 1,* , Diana Araja 2, Uldis Berkis 3, Elenka Brenna 4 , John Cullinan 5...

Science for ME are pleased to announce that we have today submitted another critique to the NIH/CDC review (following our earlier submission on the Chalder Fatigue Scale). All credit for this submission should go to the authors, and we are very grateful for all their hard work. The post below...

Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work. We have replicated the submission below...