charles shepherd

Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a cross-sectional survey in the UK Maedeh Mansoubi, Thomas Richards, Martine Ainsworth-Wells, Russell Fleming, Phaedra Leveridge, Charles...

nb also a letter from Charles Shepherd. https://pmc.ncbi.nlm.nih.gov/articles/PMC1882994/ eta: I think it was in response to this Follow up of patients presenting with fatigue to an infectious diseases clinic, 1992, Sharpe et al. | Science for ME

https://meassociation.org.uk/2024/08/vumedi-dr-shepherd-talks-about-the-overlaps-between-long-covid-and-me-cfs-in-a-video-aimed-at-healthcare-professionals/ VuMedi (where the video features) describes the platform as “a video education platform for doctors. Over 450,000 doctors use VuMedi to...

Moderator note: This post and the next two have been copied, and subsequent posts moved from this thread: JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff Posts about sex ratio have been moved to a new thread: ME/CFS Epidemiology - sex...

register for event at link Webinar: Long Covid Misconceptions with Dr Charles Shepherd and People with Lived Experience - The ME Association

An old thread, but the idea of a post-mortem biobank is often discussed on the forum, and this study was linked in one such discussion. https://jcp.bmj.com/content/63/11/1032 Not open-access Sci-hub link: https://sci-hub.wf/10.1136/jcp.2010.082032 Abstract Background Myalgic...

Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as part of a planned campaign looking at good practice and the new NICE guidelines to roll out in ME Awareness Week in May and beyond. See...

https://www.meassociation.org.uk/2020/03/the-cambridge-lectures-demystifying-me-cfs-04-march-2020/

Meeting being held today 4 September according to this tweet by ME Association.

Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. although they do say it's not just 'tiredness' they do seem to focus on it! at least they didn't ask Michael Sharpe for his opinion.. full article here...

this was a few days ago questions and Dr Shepherds answers here https://community.scope.org.uk/discussion/62274/q-a-about-chronic-fatigue-or-myalgic-encephalomyelitis-me-cfs-with-dr-charles-shepherd

Transcript: BBC Today Programme March 2019 (clip) An Oxford professor has stopped his work on chronic fatigue syndrome also known as ME because he says he's faced a barrage of online abuse from patients and campaigners. Some context… (slide) Over 80 Charities are opposed to his treatments...

[I found this of interest, as my ME was triggered by a Hepatitis B vaccination that I was required to have as a student nurse.] https://www.meassociation.org.uk/2019/02/pregnancy-m-e-and-vaccination-concerns-with-dr-charles-shepherd-15-february-2019/ “Dear ME Association, I’m 7 months’...

https://www.facebook.com/meassociation/posts/2098397253551255

https://patient.info/health/tiredness-fatigue/features/the-latest-thinking-on-chronic-fatigue-syndrome-me

" One of the ME Association’s recent research initiatives was to critically examine the theoretical basis and clinical application of the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) in ME/CFS. We felt that a closer examination of these therapies was vital...

(I'm not on Facebook so I don't know any more than this) Source: ME Association Date: August 31, 2018 URL: ME/CFS Workshop | Clinical Learning 2 | Thursday 4 October 4.00-5.00pm ---------------------------------------------------------- Key messages for primary care on the diagnosis and...

This is all I know so far - anyone know more? Programme: Helen Blaby Station: BBC Radio Northampton Datum: August 1, 2018 Time: 12:00 WebRadio: https://www.bbc.co.uk/programmes/p06cdjnv Item: Charles Shepherd and a phone-in

https://www.bbc.co.uk/programmes/b0b7mjqk from about 1:08-1:30 Actor Kirsty Strain talks with Stephen Jardine about having long-term ME, and Charles Shepherd contributes a little.

This thread has been split in order to create an In Memory thread for Merryn. To leave tributes to Merryn please go to: https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/ This thread remains here to discuss media coverage :cry: Bed-bound and in unimaginable pain, watching my...