charities

There are an estimated 250,000 PwME in the UK, not counting the influx from Covid, and yet only about 20,000 joined DecodeME (a low-effort, patient-friendly, crucial study), our two main charities probably have a total of about only about 10,000 members/supporters (the MEA has 5,000 so I'm...

In our world, a lot of the money going into medical research comes from private charities run by extremely wealthy people. Since news related to these charities usually don’t warrant their own thread, I’m creating this catch-all one. There has been a little talk in the ME/LC community in...

Ray Dalio and other celebrity friends are sponsoring $50 gift cards to the charity of your choice. Just input email here, and in about ten mins a gift card link will be sent to you. Search for the charity of your choice. I was able to get 8 friends to gift to Open Medicine Foundation, but...

I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world. We can add to it as we find them. Please post below with organisations and a website and contact...

My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association? Preferably one that funds biomed research.

I'm currently supporting Invest In ME on Amazon Smile. Do you think this is the best ME research charity to support, or is there a better one I should switch to? ME Research UK is the only other option I think, as OMF doesn't seem to be available for me as a UK Smile member. For those who...

This thread has been split from https://www.s4me.info/threads/jk-rowling-donates-£15-3m-to-edinburgh-ms-research-centre.11260/ And as I've said in another thread, since 2004, the MEA has been run by a small and relatively unchanging Board of Trustees who determine its policies and have...

Why do you +/or your family donate and/or fundraise for research? I thought it might be useful to have a thread where people could post on this issue. Edited to add: if you plan to leave a bequest, that counts also.

It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities As I have argued before, research progress is most likely if all of the following are contributing significant funds to research: (i)...

Interesting link from Twitter -

I didn’t know where to post this I just did a bit of easy research on charity incomes via http://beta.charitycommission.gov.uk/charity-search/ It allows you to type in charities to see their most recent annual income. Most illnesses have one or two main charities so I don’t include all the...

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...