canada

An initiative, funded by the Public Health Agency of Canada, has published guidelines for Post COVID-19 Condition. The website is here. On that website is this list of the full set of recommendations. You can filter by the type of recommendation and drill down to details on how they developed...

Abstract Background: Individuals living with chronic conditions (CC) typically have a higher risk of more severe outcomes when exposed to infection. Although many studies have investigated the relationship between CCs and COVID-19 severity, they are generally limited to clinical or hospitalized...

Somatic symptom and related disorders: Guidance on assessment and management for paediatric health care providers Canadian Paediatric Society ABSTRACT Somatic symptom and related disorders (SSRDs) pose significant challenges in paediatric health care due to their impacts on child and...

https://cep.health/clinical-products/fm-mecfs-pots/ Introduction Fibromyalgia (FM), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and Postural Orthostatic Tachycardia Syndrome (POTS) are chronic health conditions. Accurate diagnosis and targeted management can improve the...

https://www.mdpi.com/1648-9144/60/8/1370 A Multimodal Magnetic Resonance Imaging Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Feasibility and Clinical Correlation Abstract Background/Objectives: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neurological...

Why So Quiet about Long COVID? A top US epidemiologist pierces the silence about the pandemic’s deeply destructive long tail.

The report is out. Confirms that half of the population who report symptoms don't get better even after a year! Data speaks. https://www150.statcan.gc.ca/n1/pub/75-006-x/2023001/article/00015-eng.pdf

Friend is in Canada, has ME/CFS. What's the Canadian equivalent of the ME Association or #MEAction and is it any good? i.e. providing information about the dangers of pushing yourself to exercise beyond your normal abilities.

This thread is for a list of sub-national Canadian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. AQEM – Association québécoise de l’encéphalomyélite myalgique - https://aqem.org/ -...

Abstract Background: Myalgic encephalomyelitis (ME, also known as chronic fatigue syndrome or ME/CFS) is a debilitating, complex, multi-system illness. Developing a comprehensive understanding of the multiple and interconnected barriers to optimal care will help advance strategies and care...

Abstract Background Symptom persistence in non-hospitalized COVID-19 patients, also known as Long COVID or Post-acute Sequelae of COVID-19, is not well characterized or understood, and few studies have included non-COVID-19 control groups. Methods We used data from a cross-sectional COVID-19...

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The information about this study was posted on this Reddit Thread where apparently MacMaster University was trying to recruit ME/CFS patients. Here's how the McMasterCFS account represented itself and the study: "Our team is made up of Dr. Meredith Vanstone who is a Scientist who studies...

Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) a long-term, complex, debilitating disorder associated with poor health-related quality of life and declined functional status for individuals and a significant economic burden on society. CFS/ME is defined by symptoms and patient’s...

Abstract Background Autoimmunity has been reported in patients with severe COVID-19. We investigated whether antinuclear/extractable-nuclear antibodies (ANAs) were present up to a year after infection, and if they were associated with the development of clinically relevant Post-Acute Sequalae...

Abstract The acute phase of COVID-19 has been well studied, however with increasing post-acute COVID-19 syndrome, much is unknown about its long-term effects. A common symptom in both the acute and post-acute phases has been fatigue, assessed predominantly qualitatively. Here we present a...

"Research Opportunity for ME & Long COVID Patients in Toronto York University is recruiting ME patients and longhaulers for a research protocol in Toronto. Patients' individual limitations will be respected. See below for more details. Please contact Heather at edgell@yorku.ca or...

Title : Medical Education Webinar: Myalgic Encephalomyelitis - Diagnosis, Management and Current Research Date posted on Youtube : 6th December 2021 Video description :

Key Points Question What is the association of a COVID-19 diagnosis and mobility and physical function among community-living middle-aged and older Canadians during the initial pandemic lockdown in 2020? Findings This cohort study of 24 114 participants found that community-living...

I am starting a thread about Professor Ric Arseneau because I have come across some information about him that is concerning. I understand he gave an online presentation to people with ME/CFS, FM and related conditions. Here's a link to the slides from the presentation: bit.ly/ffdec2021 The...